Hello! Thank You for stopping by our page. We appreciate your time & concern.
This is our son, Omari Gabriel James Carroll. Born October 14, 2013. He's currently 10 months old.
We have recently found out that our son, Omari, has a rare blood disorder called "Hemophilia A" or factor 8 deficiency. What this means is that his blood is lacking the protein that helps it to clot properly. Omari has severe Hemophilia, which means he has less than 1% of factor 8 in his blood. Essentially, Omari cannot stop bleeding like most of us can. A normal bump or bruise can turn deadly for our sweet boy, while he may not appear to be bleeding externally, he may be bleeding internally into his joints or muscles. Hemophilia A currently has no cure, but it is treatable. Unfortunately it is one of the most expensive chronic disorders to treat & it only gets more expensive as he grows. Treatment also has to be frequent, as often as a few times a week, to prevent bleeding and then additional treatments when he has any trauma. We are hoping to get him into a FDA approved trial that will decrease the frequency of treatments that he needs & hopefully lower the risk of him needing extensive medical treatment by keeping his bleeding under control. Until then we need some help providing Omari with a safe environment to be a "normal" kid. In order for Omari to be able to continue developing at a normal rate by crawling, exploring, & eventually walking on his own, he needs protective gear (kneepads, clothing with padding, etc) & our home needs to be extreme baby-proofed. These are costs that no parent thinks to prepare for because no parent dreams of having a sick child. We also will have many costs due to traveling (gas, hotel,food,etc) to Nationwide Children's Hospital because local hospitals are not equipped with handling his disorder unless absolutely necessary (in case of an emergency when we can't get to children's quickly enough).
We just want our son to live as normal of a life as possible. He is not allowed to participate in any contact sports (football, soccer, martial arts,etc) all due to his condition. As he gets older, this is going to be hard to explain to him why he can't do certain things that other kids can & it scares us as parents to think he will blame us for a lot of his set backs due to his condition. But as parents, we want & need to do whats best for him. So all we ask is for a little financial help so that we can keep Omari safe. Anything Helps. We understand that times are hard for everyone right now. If you can't contribute financially, we ask that you please keep us in your prayers. Omari is our first child & we are doing the best we can as new parents. We are going to also try to do some fundraisers for him in the near future.
If you donate, we appriciate each & every one of you for not only being a part of Omari's life, but, being a part of our family. For this reason, we would love to hear from all of you who donate & pray. We want to keep everyone updated on Omari's progress. Send pictures of great moments in his life. Your contributions will help him celebrate life & that means the world to us. So contact us via Email that's located on our profile page, with the subject: Omari Progress. Thank you all again for your time & concern. God Bless!
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