Kinsley AnnMarie was born with a Bi-Lateral cleft lip that also affected her front gum line. She had her 1st surgery to repair it at 3 months old and still needs several more surgeries to repair her gum line. At age 2, after numerous Urinary Tract Infections (UTIs), we found out by ultrasound that Kinsley has a solitary kidney, she is missing her left kidney. She also has Sacral Agenesis, meaning her Sacrum did not form properly. The Sacrum is formed by 5 bones and Kinsley is missing the last three, ending at S2. She has a split spinal cord malformation with a tethered spinal cord which she just had surgery to untether the spinal cord on January 23, 2014. Because Kinsley is missing part of her Sacrum, she is also missing the nerves that supply the bowel and bladder with the impulses to work properly, causing a Nueurogenic bowel and bladder. These issues cause Kinsley to be incontinent of stool and urine but at the same time she has no urge to have a bowel movement or urinate. Due to this Kinsley has a severe reflux of her kidney causing the urine to back flow up to the Kidney and cause infections and Hydronephrosis (Fluid on the kidney). She has already been diagnosed wtih Chronic Kidney disease at her young age. Kinsley has had numerous surgeries to try and correct her reflux and at current time she has a vesicostomy that is draining her urine. A vesicostomy is a small opening from the bladder out through her abdomen, called a stoma. She is also being seen by a Gasteroenterolgist for her bowel problems. She recently had two procedures, one to clean her out and one to test pressures to check if she can feel the urge to have a bowel movement. The next step may possibly be a diversion or Colostomy.
Kinsley and her family have been going through a lot over the past few years and recently have had a lot more added stress. Kinsley's dad, Bill Hunt recently had surgery on his shoulder from a work related injury. He is out of work for several weeks and is only reciveing partial pay. Kinsley's Mom, Jennifer Hunt has put her Career of being an LVN to stay home and care for Kinsley. Kinsley's family could use some help from friends and family to help with medical cost for up coming procedures. Any donation will be Greatly appreciated. We are also so thankful for all the prayers and encouraging words you all have sent to Jen and her Family! Please share this and help raise money for an AMAZING little girl!!
Joleen Beiley (Kinsley's Aunt-Jen Hunt's sister)
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