They are both registered blind,mentally the age of a 1yr old and have many heart & lung conditions, one of our boys is also deaf.
They were 11weeks prem born with three rare syndromes. They had a very difficult begging in life, spending their first 2 and a half yrs in great ormand st hospital before being allowed home with tracheostomys and venterlated 24/7.
Now that they’re 14 years old there needs are harder in some ways and the boys are getting harder to stimulate.
They do at times get very frustrated and need more stimulation .
we are doing everything we can to raise enough money to build the much needed brick built sensory room in our garden for our boys.
They have needed this for many yrs but the need has become much greater since them turning teenagers and getting much bigger
Our sons charity name is T.W.I.N.
thank you for taking the time to read
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