<div>My name is Gina Pens. Trying to get my families/siblings stories out there and also WE ARE IN NEED OF A WHEELCHAIR ACCESSIBLE VAN. I will try to make this a long story short as it is so much easier to explain in person. I have 2 siblings with special needs as well as a very rare disease. Rare as in only 50 in the WORLD and only 2 in the United States which happens to be my brother and sister and as of January 2024 when my sister was in the hospital in the PICU, we then found out she is the ONLY known female Anthony who is 27 and Alyssa who is 15. At the beginning of their lives, they were both able to walk and talk and completely normal as children because of their disease they just progressively lose everything. Yet, they did not get a diagnosis till 2018 which then me and my family had to go to Nashville Tennessee to UNDIAGNOSED DISEASE NETWORK at Vanderbilt Hospital. Anthony is currently home in a hospital bed hooked to medical equipment. Alyssa goes to school but is completely wheelchair bound. Both have feeding tubes. Both are quite medically fragile. Both non verbal. Again, there is a lot more to their story, just so much to explain. We have a donation account with Old National Bank also can make donations to the account named, “For the benefit of Anthony and Alyssa Pens” is what it is under.
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<div>Thank you! Feel free to contact me at [email redacted]. There condition is called Hereditary Spastic Paraplegia Type 35 (<a href="https://undiagnosed.hms.harvard.edu/participants/participant-071/." target="_blank" rel="noreferrer noopener"><a href="https://undiagnosed.hms.harvard.edu/participants/participant-071/." target="_blank" class="" rel="nofollow noopener noreferrer">https://undiagnosed.hms.harvard.edu/participants/participant-071/.</a></a> ) The disease has caused them to lose their ability to walk and talk which they once could among many other things.
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<div>There is no cure for the disease and it is progressive. This van is crucial for their mobility to get to and from many therapy and doctor appointments. Anthony and Alyssa both attended Coal City Schools. Alyssa still attends. An accessible van would be life changing.
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<div><a href="https://www.shawlocal.com/the-herald-news/2024/03/15/coal-city-siblings-battling-extremely-rare-disorder-special-van-needed/" target="_blank" rel="noreferrer noopener"><a href="https://www.shawlocal.com/the-herald-news/2024/03/15/coal-city-siblings-battling-extremely-rare-disorder-special-van-needed/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.shawlocal.com/the-herald-news/2024/03/15/coal-city-siblings-battling-extremely-rare-disorder-special-van-needed/</a></a>
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Lynette Mefferd

Mark Hanley

Ken Sandine

Anonymous

Robert Desiderio

Stefanie Baran

Kitty Vancina

LAURIE RAMSEY

Catherine Turley

Harold Franz

Loretta Casey

John J Halliday

Kelley Butler

Julie A Branchaw

Judith A Hafenrichter

Anthony and Alyssa- Wheelchair Accessible Van

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

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fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

currencyCode

Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

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fallback mode accounts

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p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

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UKCharities

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route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

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braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

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Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

NPO recommendations prod

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

ai_title_page

anyword

openai

control

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Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

userCurrencyCode

Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

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challenge-fundraisers

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CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Anthony and Alyssa- Wheelchair Accessible Van

Still $35,495 to go. Help us build momentum.