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That's right everyone, I've been offered a spot on a tandem skydive and I've got 2 weeks to raise £1,000.
Easy!??
I NEED your HELP! .... And a few quid!!
I'm doing it to raise money for IDIC15q (Alliance Charity and UNIQUE Charity)- yes - the disorder you've probably never heard of!
A few years ago I had the privilidge of meeting and working with a very special kiddy, to put it simply he hss a chomosone disorder, he has too many of the chromosome 15q11.2-13.1. in various cells of his body and they cause chaos to his world.
What does that mean?
Learning difficulties,
Poor motor skills,
Language delay - unfortunately some of these kids never learn to speak
Autism
Anxiety disorders
Seizures
Sudden Death
The last two are highly disturbing, how can sudden death be a symptom? Doctors don't know what to do and prescribe a cocktail of drugs to try and control the seizures, (on a bad day they could have a hundred or more)
When I asked what I could do to help I was asked to raise money for research, research that could change the outlook for my little friend and others like him. These kids undergo numerous therapies to manage their symptoms but there just aren't enough answers.
DUP15q Alliance is a research and support charity, they hold events for parents and provide a community for those whose worlds have been turned upside down by fate, there's no cause for DUP15q, it's a "blip" (as far as we currently know) it affects girls and boys, it could happen to anyone.
There are ZERO specialists in the UK, so British parents have the difficult, expensive decision whether to try and get their child to a specialist in the USA.
This isn't good enough.
Please help me raise at least £1000 to put directly into trying to make these children's future a brighter one.
With all my heart, THANKYOU.
All the proceeds from the page below go to DUP15q Alliance and the Uk support group UNIQUE (50/50), I will be covering the cost of the jump myself .
www.dup15q.org/understanding-dup15q/what-is-dup15q-syndrome/
http://www.dup15q.org/understanding-dup15q/what-is-dup15q-syndrome/
More info on DUP15q Alliance:
http://www.dup15q.org/the-alliance
More Info on UNIQUE:
www.rarechromo.co.uk/html/home.asp
MASSIVE THANKYOU FOR YOUR SUPPORT
Easy!??
I NEED your HELP! .... And a few quid!!
I'm doing it to raise money for IDIC15q (Alliance Charity and UNIQUE Charity)- yes - the disorder you've probably never heard of!
A few years ago I had the privilidge of meeting and working with a very special kiddy, to put it simply he hss a chomosone disorder, he has too many of the chromosome 15q11.2-13.1. in various cells of his body and they cause chaos to his world.
What does that mean?
Learning difficulties,
Poor motor skills,
Language delay - unfortunately some of these kids never learn to speak
Autism
Anxiety disorders
Seizures
Sudden Death
The last two are highly disturbing, how can sudden death be a symptom? Doctors don't know what to do and prescribe a cocktail of drugs to try and control the seizures, (on a bad day they could have a hundred or more)
When I asked what I could do to help I was asked to raise money for research, research that could change the outlook for my little friend and others like him. These kids undergo numerous therapies to manage their symptoms but there just aren't enough answers.
DUP15q Alliance is a research and support charity, they hold events for parents and provide a community for those whose worlds have been turned upside down by fate, there's no cause for DUP15q, it's a "blip" (as far as we currently know) it affects girls and boys, it could happen to anyone.
There are ZERO specialists in the UK, so British parents have the difficult, expensive decision whether to try and get their child to a specialist in the USA.
This isn't good enough.
Please help me raise at least £1000 to put directly into trying to make these children's future a brighter one.
With all my heart, THANKYOU.
All the proceeds from the page below go to DUP15q Alliance and the Uk support group UNIQUE (50/50), I will be covering the cost of the jump myself .
www.dup15q.org/understanding-dup15q/what-is-dup15q-syndrome/
http://www.dup15q.org/understanding-dup15q/what-is-dup15q-syndrome/
More info on DUP15q Alliance:
http://www.dup15q.org/the-alliance
More Info on UNIQUE:
www.rarechromo.co.uk/html/home.asp
MASSIVE THANKYOU FOR YOUR SUPPORT
Organizer
Angela Bettany
Organizer