Amber's Medical Bills

On November 5, 2016 we were blessed with the birth of our first child, Amber Bryn. Soon after birth she was admitted to the NICU at Emory. She was having problems breathing and feeding. After 5 days she was transferred to CHOA in hopes of finding a cause to the issues.  At 16 days old, Amber Bryn was diagnosed with a rare neurological disorder called Pontine Tegmental Cap Dysplasia (PTCD). Amber has since had two surgeries one for a tracheostomy and a second for a gastrointestinal tube. Amber has thus far spent her entire life in both the NICU (38 days) and the TICU (18 days and counting).

Once she is finally able to come home there will be a need for in-home nursing as well as specialized equipment to help her eat and breathe.

It has recently been discovered that Amber also has severe hearing loss in one ear an no hearing in the other as she does not have the auditory nerve required. 

There is a lot of uncertainty regarding her future, and only time will tell us what we are up against. Amber has made progress but still has no date to which she can come home.