Hello. I am an aunt of a smart, beautiful girl Alyona who lives in Moldova. Back in 2012 she was diagnosed with SMA Type 2 ( Spinal Muscular Atrophy Type 2). Around age 1 her parents noticed that Alyona was not able to use her feet to stand, crawl on her own. They were running aroung every clinic to find out what was the issue but no one could figure out what was it that she had.
Than her parents found a clinic that is proficient in neurological disorders in Saint Petersburg, Russia. They sold their car to raise money to take her to that clinic. After they visited the clinic and had some lab tests done Alyona was diagnosed with SMA type 2. The doctor prescribed some medicine and also recommended to buy a dynamic parapodium stander to help her with standing. Thats all they could recommend because they aren't advanced with this type of desease. As years were passing by she was getting only worse.Her back got rachiocampsis. Her feet are getting curved. She now has difficulty breathing. She can't even seat without support. Even the simple flu can be risky and dangerous for her. Most of the time she is in the house to be protected from all the viruses so that she doesn't get sick.
Recently her paretns found a clinic (UCSF) here in United States that is willing to take her and find the right treatment so that someday she will be able to walk, enjoy all the activities children her age do. Because they don't have any health insurance that will work in United States, it is not possible for them to raise so much money to pay for her treatment and for the labs, tests, that will have to be done here. And the sooner they get the needed funds the faster they can bring her here so that doctors can find the right treatment and start it. The clinic is planning to take her this summer. So the sooner we get funds her parents will notify the clinic and make needed payments and clininc will take her.
Our family is asking for your help. If your heart opens up to help us, we would greatly appreciate your donations. This will help Alyona to have her dream of being able to walk come true, as she prays and asks God for giving her strenght to walk everyday. May God Bless you.
- Vera Kova
- Anonymous Na
- Sergey / Natalya Burdeynyy
- Anonymous Na
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