<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/89582853_1762229056448446_r.jpeg" width="100%" />
<div><br />
</div>
<div>Hello, I'm Gael Mathías Puentes. I live in Colombia and I'm just 21 months old.
</div>
<div><br />
</div>
<div>I was diagnosed with SMA (Spinal Muscular Atrophy), a disease that affects my muscles and my hability to move like other children. Despite everything, I'm a child full of love and zest for life.
</div>
<div><br />
</div>
<div>I understand everything that's happening around me, and even though my little body doesn't respond the way I'd like, my heart and mind are full of dreams. I dream of the day I can sit up alone, eat without help, run, and play like any other child.
</div>
<div><br />
</div>
<div>For that dream to come true, I need the most expensive medication in the world: Zolgensma. But this medication isn't available where I live, so my parents are doing everything they can to get it, but we need your help.
</div>
<div><br />
</div>
<div>Any contribution, no matter how small, can bring me closer to that opportunity to live fully, to move, to explore the world for myself.
</div>
<div><br />
</div>
<div>Is there a cure?
</div>
<div><br />
</div>
<div>Currently, Zolgensma gene therapy is the most advanced option for treating SMA type 1 in children under two years of age. This single-dose treatment replaces the defective SMN1 gene, helping to restore muscle function. This treatment significantly improves life expectancy and quality of life.
</div>
<div><br />
</div>
<div>In which countries is it available and how much does it cost?
</div>
<div><br />
</div>
<div>Zolgensma has been approved and is available in 51 countries, with costs varying by region and agreements with governments or insurers:
</div>
<div><br />
</div>
<div>United States
</div>
<div>Canada
</div>
<div>Japan
</div>
<div>European Union countries (Spain, Germany, France, among others)
</div>
<div>Brazil (government agreement for 250 babies per year)
</div>
<div>Argentina (agreement with reimbursement based on results)
</div>
<div>Among others
</div>
<div><br />
</div>
<div>Access in Colombia
</div>
<div>In Colombia, access to gene therapies like Zolgensma is very limited due to its high cost. It is not included in the public health system, nor are there any agreements. However, some families have turned to fundraising campaigns to pay for treatment abroad.
</div>
<div><br />
</div>
<div>Conclusion
</div>
<div><br />
</div>
<div>Zolgensma represents hope for children with SMA, but its high cost remains a barrier in many countries, including Colombia. For this reason, I want you to help me ensure that my dream of living is not a limitation.
</div>
<div><br />
</div>
<div>If you can help us, you'd be giving me hope for a life full of possibilities.
</div>
<div><br />
</div>
<div class="youtube-replace">Thank you for listening to my story and for any help you can offer. Thank you for being part of my fight!
</div>
<div class="youtube-replace"><br />
</div>
<div class="youtube-replace"><a href="https://linktr.ee/TodosconGaelPuentes28?utm_source=linktree_profile_share" target="_blank" rel="noreferrer noopener"><a href="https://linktr.ee/TodosconGaelPuentes28?utm_source=linktree_profile_share" target="_blank" class="" rel="nofollow noopener noreferrer">https://linktr.ee/TodosconGaelPuentes28?utm_source=linktree_profile_share</a></a>
</div>
<div><br />
</div>
<div class="youtube-replace"><br />
</div>

Sara Hurtado

Mileydes Lobo Chinchilla

Lina Sanz

Anonymous

María Camila Quintana Murillo

Jereny Nava

Juan José Betancur

Dalila Araque

Diego Castro

Luisa De latorre

Shirlley Conde

Deysi Martinez

Angelica Munoz

ALLS FOR GAEL PUENTES BABY 21 MONTHS AGE NEED URGENT UR HELP

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

currencyCode

Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

NPO recommendations prod

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

categoryGroup

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

userCurrencyCode

Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

ALLS FOR GAEL PUENTES BABY 21 MONTHS AGE NEED URGENT UR HELP

Still $2,096,278 to go. Help us build momentum.