Many of you do not know this and have not heard from me in many months. I have been severly ill and undiagnosed for almost 9 months now. I had every symptom in the book for hundreds of different illness possibilities which caused difficulty in diagnosis. As did my bloodwork and all testing being done with minimal answers to getting me feeling better. I was quickly deteriorating and losing myself. I lost 35pds suddenly, lethargic, could barely walk, severe pain laying in bed. Insomnia at night and exhaustion during the day. Sores coming out on my skin like a leper on my arms, legs, and then neck and face. Going out was difficult as my insecurity of how I looked and felt was now reinforced by the looks I would get at the store or people fearful of catching whatever I had standing 10ft away in line. As frustration and fear built for myself, my husband and two kids. My boys fearful to hug me afraid they would get sic and not wanting me to go to school for being embarrassed by how I looked. My husband afraid and helpless and I up all night researching possibilities for diagnosis, treatments, cures all fighting to get my life back.
As time went on with my health deteriorating and only hearing from doctors well you feel better today right? So just go with that, was their answer for having no fucking idea what else to tell me. Or, you are lucky to be alive you were on deaths door. Sorry to say I didn't help you any lucky you did natural detox and supplements. Really Doc, WTF!!!!
The natural detoxes which kept my body organs still functioning as the acid within my body built the the point of such severe pain in my bones I could barely walk and could not bend over. Getting tingling down my arms, couldn't open my hands due to joint pain, and numbness in my toes. There was no more running with my kids or even playing on the floor. Isolation and pure focus on getting better from whatever I had was the only thing on my mind.
My kids where afraid I was going to die and still are as we keep getting let down with false diagnoses. First I was diagnosed with rocky mountain spotted fever and tulermia and given 2 rounds of severe antibiotics for tick diseases. To no benefit. Retested and came back as false positives now with an infectious disease doctor who was the first doctor I had seen ( already my 3rd) who acknowledged something was not right and if she didn't know she would send me to someone who did.
More blood work and samples biopsies etc, with no answers. All inconclusive stumping the doc even. Now being sent to world renowned infectious disease doctor in city for answers. After meeting him I felt hopeful for the first time if anyone would figure it out it would be him. 5 days after my visit with him where he did more biopsies and bloodwork he gave me a diagnosis. One to which I had leaned towards the entire time being told it was impossible. Great awesome lets get the medicine and be cured. NOPE!!! Now fighting with the insurance company who will not pay for the medicine which is 3000 and I need 2 rounds.
So there is a tidbit into our lives the past 9 months. It in no way shows the pain and suffering we have endured. Many of you would not recognize me if you saw me today. I have pictures throught my journey of how horrific I looked. Im still debating about uploading them. The picture that is on the cover is from dec 2016 before I got sick.
So, here I am letting you all know my story and asking for any donation if at all possible for me to get the medicine, get healthy, and back to my boys and husband.
The past 9 months have been a nightmare of torture for all of us and we need it to be over to start healing together.
I am asking for any support you can give, words of encouragement, or otherwise. My goal of monetary donations is to pay for the medicine if the insurance continues to deny me and if any money is left over to take my boys on a dream vacation to celebrate our family being back. I have extreme gratitude for all things again and cant wait to get back to being me physically, mentally and emotionally.
For those who donate I am happy to share my diagnosis and progress after the medication. Just private message me.
Thank you for all you love and support in all the ways that it is shown.
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