Alex with SMA needs the worlds most expensive drug

Alex, a 1.5 year old boy from Slovakia, was diagnosed with Spinal muscular atrophy (SMA1). There is hope for him called Zolgensma. According to statement from Boston hospital he is a suitable candidate for it. The problem is that the cost of it is 2.1 mil USD! His parents are doing everything to help their little son. It's important to raise money as soon as possible because little Alex doesn't have so much time. He needs to get the treatment before his 2nd birthday (July 20th 2020). If he doesn't get treatment it will result in the loss of motor neurons and progressive muscle wasting. The majority of children do not survive past 2 years of age due to respiratory failure. Alex is currently getting Spinraza treatment which helps him live but without Zolgesma he will never be able to sit up or walk. Please help Alex to become a happy kid!

Alex's instagram 
Alex's website 44987232_1581312029484967_r.jpeg

44987232_158131207151477_r.jpegI'm the cousin of Alex's mom. We spent many summers together as kids so it makes me really sad to see the challenge she's dealing with. I'm trying to do something to help their situation. You're welcome to check this fundraiser with her on facebook . She couldn't start the fundraiser from Slovakia so I did it instead of her. 

Other ways how to help Alex:

PayPal 
Ludia ludom - Slovak fundraiser 
Fundly 



Donations ()

  • Zuzana Vachalek 
    • $90 
    • 2 hrs
  • Natalia Klemparova 
    • $10 
    • 6 hrs
  • Jana Beresikova  
    • $10 
    • 7 hrs
  • Janka Soltesova 
    • $10 
    • 8 hrs
  • Anonymous 
    • $5 
    • 12 hrs
See all

Organizer

Lenka Petnyova 
Organizer
Canmore, AB
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