This pain is somewhat of a rare thing called Trigeminal Neuralgia (TN), it is a condition where the nerve coming out of the brain going to the face, is damage inside the skull. I have the typical version of this, where there is proof in the form of an MRI that a blood vessel is pressing on the nerve. Some of the blood vessels have caused damaged to the nerve. This causes constant and sudden extreme pain. Most people have what is A-typical TN. There is the pain but no physical proof.
As I said, I have typical TN, but there is a twist I have Bilateral TN. So both sides of my face are affected by this. Wind/cold is the just excruciating any way you look at it. I deal with all this pain and still work a 40hr work week. Most of the time I come home and can barely move. My family has to watch me be in pain and do nothing. I hope this will change soon.
I was able to see a neurosurgeon and they want to do surgery. I will need to have brain surgery to try and fix this. I do not know what to do. We as a family will not be able to handle the pay cut that we will have to take for me to do the surgery. My wife's health is not to the point of being able to work and then take care of me when she would get off work. I may be off between 3 to 6 months to recover.
This is why I made this page, I do not want to ask for help, but this is out of my hands. Either I get the surgery and fix the pain, or let the pain control my life. I'm tired of losing a battle to pain.
One of the only ways I can truly rest is if I know everything it taken care of. Part of that is friends helping with activities for the kids. The other is the financial part. If I see my wife stressing about bills, I will not listen to my body, and hurt myself to help.
By what I have calculated we will not have the money keep the bills even close to current, if I do the surgery. We just get by on my pay right now. The short term disability pay will help, but it is a 30% cut in pay.
This is why I'm asking for help. To be able to be a father to my kids again. A husband to my wife. Not the guy stuck to the couch crying in pain. To enjoy the thought of going out to do something, not how much is this going to hurt? Lastly, to give me peace of mind so that I can truly rest and heal the way I need too.
Thank you for taking the time to read this. If you can help even more thanks. If not, I hope I was able to teach something about trigeminal neuralgia and how it changes the life of one person and how that changes everyone else.
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