Addison suffers from ROHHAD* and is the only case in the state of VT. She went into renal failure for 6 weeks in 2014, which caused severe brain damage. Addison can no longer walk, or move much without the support of a wheelchair. Addison spent 3 months working hard at a rehabilitation center for children in NY. While there, Addison spent a lot of therapy time riding a fantastic adaptive bike.
*Rapid-onset Obesity with Hypothalamic dysfunction, Hypoventilation and Autonomic Dysregulation
Diagnosed in February 2014, Addy has since undergone several procedures including: tonsillectomy, adenoidectomy, tracheotomy, and surgery to biopsy a small mass found in her lower back.
Addy returned home in January 2015 and is settling back in with her mom, dad, grandpa, and 2 black labs Dewey and Auvee.
Join Team ADDYtude!
- Doreen Sheridan
- Randy & Kitty Clark
- Underhill Game Dinner
- Patrick Lamphere
- Stacy Ward
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