That day we were thrown into parenthood in the most stressful way. Addison was sent to Toledo Children's for breathing problems, and during her week-long stay it was discovered that she had dysplastic kidneys. She was promptly transferred to Mott Children's Hospital in Ann Arbor, MI where we stayed for nearly two months, and began treatment for End Stage Renal Disease under the care of their excellent Nephrology department.
Two weeks after her admittance into UofM she had her first surgery to insert a Peritoneal Catheter for Dialyis, a G-tube for feeding and a Broviac line for drawing blood. Her official diagnosis came down, and we were told Addison would need to start dialysis and continue on it until she could grow large enough for a Kidney transplant.
We have spent nearly a year doing Peritoneal Dialysis from home, traveling to and from Ann Arbor regularly for her monitoring and regular appointments. Today we got to meet with the transplant team who urged us to begin a fundraising campaign to help with the unexpected financial costs before, during and after transplant. We will find out soon when she will be placed on the transplant list, and from there we are in "GO mode" until the call comes in.
We have wonderful friends and family who have supported us through this entire year. We have been incredibly lucky to have some of the best doctors in the area looking after our daughter, and now though it pains us to have to ask for funds, we know we must do everything we can to be available for Addison no matter what.
Thank you for taking the time to read the short version of the beautiful story we're living, and thank you to anyone who is willing to help us focus on what Addison needs first, and how we can afford it second. We love you all, and cannot wait to see how our Warrior Princess changes this world.
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