Addie was born with a Primary Immune Deficiency Disease called Selectiv IgA Disease. Addie also struggles with other cytokines which are abnormal. Because of her immune disease she gets sick very easily and has difficulty overcoming the illnesses. Addie has many doctor's appointments, medications, lab testing, and so on.
I, Stephanie Wolf, her mother, have a Primary Immune Deficiency Disease called Common Varriable Immune Disease (CVID). I have to do weekly infusions in order to stay alive. This is a reality that Addie will more than likely have to face as well.
Addie (and myself) does not make the needed antibodies to fight off virsues, allergians, and bacteria. As of now the IgA antibody is not replaceable.
The treatment Addie needs and changes to her treatment plan will be a life long fight. There is no cure for the diseases she and I have. Although researchers are working so hard on finding the light at the end of the tunnel.
A strong urgency in Addie's case is our immunologist Dr. Roger Kobayashi has seen some abnormalities in other areas of her lab work. Abnormalities he and his colleauges do not have an explination for. He is looking into doing genetic testing on both of us to see if there are answers hidden deeper in her tiny body.
The donations we hope to receive from others will help with paying for doctor's visits, lab work, keeping a roff over our heads, food in her tummy, medications, genetic testing, and the missed work I will have. This is a life long expense Addie will have to deal with and my hope is to help ensure her financial future is stable.
Any assistance from family, friends, loved ones, and the community will be so greatly appreicated!!
For further information on our immune diseases you can find great information at primaryimmune.org
- Jennifer Eloge
- Lori Morrissey
- Jude Delgado
- Caitlin Curran
- Kelly Yungbluth
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