My husband Adam was diagnosed in 1998 with a rare liver disease, Primary Sclerosing Cholangitis (PSC) and Crohn's disease, a chronic inflammatory bowel disease PSC remains an incurable disease that leads to liver failure, and the only current treatment is a liver transplant.
If there is any doubt about the seriousness of this disease, know that it took down NFL legend Walter Payton. On the bright side, Chris Klug who received a liver transplant in 2000 went on to become a professional alpine snowboarder who won Bronze at the Olympic Games in 2002 Salt Lake City and Gold at the Winter X Games in 2016 Aspen. However, there is still a chance that the disease will recur and that doesn't include all the risks of continuing to be on immunosuppressive drugs for life which are also very expensive.
We have had a tough year on top of being put on the transplant list Adam was laid off from his job. We are thankful he found another job but its not as much pay as we had prior. We are also thankful that I am able to have my jobs with childcare as well as take care of the boys. However we are barely making ends meet so the extra costs of medical bills and everything that comes with that are difficult for us.
The total cost of a living donor transplant is roughly $580,000 or more. Although insurance will approve this procedure and pay for most it will not cover it all. We are asking for this amount due to what insurance will not cover & living expenses while out of work for a few months. If there is extra it will go towards medication costs.
All donations, regardless of the amount, are greatly appreciated and will make a difference. Your support means the world to us. Thank you.
Update: They found a tumor In Adam’s bile duct. They did a biopsy and determined that it is cancer. He has been diagnosed with bile duct cancer called Cholangiocarcinoma. The transplant is post poned for now as we fight cancer. The money will now go towards time not working as we go for hospital appointments and any need during this difficult time of fighting this rare cancer. Thank you for your support.
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