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#pheovsfabulous- rare cancer fight


                           https://pheovsfabulous.com 


Please help me in sharing & supporting Miranda's life & ongoing care. 

Some of you know Miranda, but for those of you who don't, she has metastatic pheochromocytoma - a extremely rare cancer where the tumors produce adrenaline causing her to be attacked by her own body. She suffers all the symptoms of the cancer taking over her body, but even worse, she suffers the symptoms every day of the pheochromocytoma attacks causing her to never know when the next attack will come, and live her life constantly being in excruciating pain - I can never explain what it is to have what she has. 

You can read more about it in her words here: 

https://pheovsfabulous.com/my-story/

The last two years just since the recurrence of this disease as part of her palliative care plan, she has had to...

-undergo major surgery to remove as many tumors as possible, along with all of the vital organs they were attached to.

Partial liver, kidney, intestines, bowel, gall bladder, etc. 

-undergo experimental radiotherapy hours away

Current:

-inject a form of chemo at home up to 3 times a day to try and control the worsening symptoms 

-she is part of an experimental clinical trial for another high dose radiotherapy several hours away, every 8 weeks 

These are just the main procedures she's gone through, I can't even list the amount of tests and other procedures she's had. 

It's normal to have to travel for specialized care and have many things to be concerned about with a rare cancer, I would just like for her to be able to have less to worry and hopefully improve her quality of life. 

Whether it be helping with her constant travel costs, hotel fees, medications, living expenses, adapting her home, or things to make her life easier and more comfortable. 

Her Story... 


Miranda's life changed at the age of just eighteen years old, with a rare disease called pheochromocytoma.

She is one in a million, and so is her disease.

She suffered for over a year without a diagnosis that gave her a heart attack, multiple strokes and brain damage --- this was just at 18. 

She was finally diagnosed with an extremely rare tumor called a pheochromocytoma, imagine having a tumor that secretes mass amounts of adrenaline into your body... making your own body like a bomb, and causing you to suffer attacks that feel like heart attacks that make you sweat, vomit, black out, have your blood pressure raise through the roof, your heart rate shoot up, you shake, constantly and without warning every single day. 

She underwent an extremely dangerous surgery to remove the tumor, and died on the operating table for three minutes.

Miranda pushed against all the odds since that time. It would be October 2014 when her life would completely change,  she would be told she has 1-5 years to live. That her pheochromocytoma is back, it's now cancerous, it's all over her vital organs, and it can only be managed with procedures to 'slow it down', but there's no cure, she would now be palliative at 24. 

She still manages to spread awareness for this rare disease, stay positive, and has made this her mission. 

She always says she wants to find the good in every situation, and help as many people along the way through her journey... I would love to be able to come together and help give something back to them.

Please visit Miranda's blog Pheo VS Fabulous to learn more about her cancer and follow her journey, thank you. 

Debbie Edwards 

Miranda in Quebec city at the clinical trial, receiving radiotherapy. soon to be round 3 


Miranda - bone marrow collection - preparing for radiation treatment! 


 #mirandastrong #pheovsfabulous

Miranda & I 
So fortunate to have such a loving and caring husband to take care of my daughter throughout this journey... 

 

Organizer

Debbie Edwards
Organizer

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