We are reaching out to our family and friends on behalf of our dear Lacey Grace, a recent graduate of Agoura High School who is currently studying at Santa Barbara City College. At the tender age of 15, Lacey was diagnosed with Fibrolamellar Hepatocellular Carcinoma (FHC), an extremely rare form of adolescent cancer affecting only 1 in 5 million people. Recently, Lacey has progressed to stage 4 FHC, as her last imaging showed that her tumors have grown seven times the size that they were only eight weeks ago. In an immediate effort to save her life, she will be flying to Chicago for Debulking surgery, which involves removing tumors from liver and abdominal wall. She will also undergo ablation of tumors and Fertility Preservation, as each surgery is followed by chemotherapy. The next plan would be a living donor liver and bone marrow transplant in Pittsburg with Lacey’s mom or siblings as a donor. Her last three surgeries were each followed by painful rounds of chemo, her last one with a 24/7 pump of 5FU through a port in her chest and Interferon Injections three times weekly.
Lacey has been tirelessly fighting for her life for the past four years, but if you didn’t know that she was suffering, you would have never guessed it. She balances her life as if she has superpowers. She carried a full time job throughout high school while remaining academically driven, and still made time for friends, family and exercise. Her bravery is admirable; upon her diagnosis, she didn’t wallow and ask “Why me?” Instead she said, “Try me.” Amazingly, Lacey began her own organization to bring awareness to the little known Fibrolamellar Hepatocellular Carcinoma to help others suffering as she is.
Lacey radiates happiness, ushering sunshine into the lives of those she loves and touching anyone she meets with a ray of positivity. Her outlook on life is never wavering, reaching beyond being simply inspirational to those who know and love her, and challenging us to adopt a similar mindset of fearless love and abundance. Her laugh is contagious, and hanging out with her is a spontaneous, exciting adventure. Lacey’s originality is evident in the uplifting artwork that she creates; even her social media presence is geared toward encouraging others. She is a beacon of hope, a spreader of joy. Her strength truly makes her an absolute warrior. To say she is 1 in 5 million is an understatement.
Due to the rareness of her cancer, Lacey has to travel to specialized doctors who know how to treat her, which only adds to the financial stress of her family at this time. All donations are greatly, greatly appreciated and will be put directly toward paying her massive medical bills, as well as co-paying for fertility treatments, (as her chemotherapy will damage her ability to have children in the future), and help cover additional costs associated with Lacey’s care. We believe she can be healed and have children - we need more people like Lacey in this world! We ask for your prayers, we honor your kindness, and we thank you from the bottom of our hearts for your donations! Please feel free to share her story, we need all the support possible!