Hi everyone, thanks for stopping by ☺️ We are the Mezinis - Kerry, Aleks, Mila (all humans) and Poppy (the gorgeous fluffy Maine coon)   Our amazing little Mila Moo turns 3 on the 31st August and is about to start her formal education journey in Bathgate, West Lothian, Scotland.  We are initially setting this page up because we are encountering real difficulties getting Mila access to the necessary (and extremely expensive) equipment she needs in her early education settings - more about this on our social media pages. But the reality is, we hope the council see sense and that we don’t have to use any of the funds we raise for this. Recently, thanks to the power of community and wonderful world of social media, we have been able to connect with parents in our position who do an incredible job for their little ones. We have discovered a whole host of amazing equipment options and alternative surgeries / therapies that the NHS / government don’t provide for our children, sadly. Treatments are costly and mostly require trips abroad (luckily we love to travel and have managed to incorporate some holiday time into the two therapy trips we’ve made so far ☀️).  Regular access to these specialists and resources will give Mila the increased independence that she so craves and a better quality of life; that she so deserves. Why does she need this? Mila was born with an extremely rare genetic (not hereditary) condition: COL4a1-related cerebral palsy.
 What does this mean?
 This means Mila has a vast and complex range of additional support needs and for the most part, has all the care and support needs of a newborn child.
Mila has profound physical disabilities. Amongst many other symptoms, she has epilepsy, sleep issues and is visually impaired. Mila does not yet have full head control; she cannot yet sit, stand, walk or talk. Experts have so far concluded that she is unlikely to do any of these things.
 Mila is bright, curious, clever, SO funny (and cheeky), fiercely independent and sociable. She can wriggle on her front across the floor and communicate in her own way, even if she can’t speak. She absolutely adores time around other children and it brings her on immensely. 
Her degree of emotional intelligence, social awareness and overall comprehension rivals her peers.

After a huge amount of research, consideration and discussion, Aleks and I have made the decision to place Mila in a mainstream setting. With the right support and equipment in place, she will thrive and help others to, as well. Anyway, I’ll share everything about the journey and Mila’s Magic via social media soon. All our love and gratitude for the amazing support so far. The Mezinis  ❤️❤️❤️

Josh Lambert

Kerry Mezini

Rea Risto

Carol Armstrong

Majlinda Risto

Elizabeth Tappenden

Hollie Bartley

Marshall Douglas

Jennifer O Higgins

Lauraine Bate

Claire Riley

Linda Nisbet

Anonymous

Margaret McGraw

Roger Schuler

Samantha Mooney

A little bit of magic to help our Mila sparkle ✨

A little bit of magic to help our Mila sparkle ✨

Still £81,669 to go. Help us build momentum.