My name is Jenivive , and I’m writing with a heavy heart and a deep hope for support for my incredible son, Osita. Osita is a bright, determined, and kind young boy who faces more challenges in his daily life than most of us can imagine. Despite everything he has been through, he approaches life with a resilience that inspires everyone around him.
Osita was born with complex medical needs, including VACTERL association—a rare condition that affects multiple parts of the body. Over the years, he has endured surgeries and treatments for conditions like exomphalos minor and colonic atresia. These medical challenges have shaped his young life, but they’ve never dulled his spirit.
In addition to these health issues, Osita lives with spinal abnormalities, including an abruptly ending spinal cord and a low conus medullaris. These make mobility a significant challenge for him. While Osita can move around with a traditional wheelchair, it’s physically demanding and limits his ability to fully participate in school activities and enjoy time with his friends.
An electric wheelchair would be life-changing for Osita. It would allow him to navigate school with greater independence, reduce the strain on his body, and give him the freedom to move around more easily. Unfortunately, despite his clear need, we’ve been told that he doesn’t meet the NHS criteria for sponsorship.
This is where we need your help. We’re reaching out to ask for your support to raise the funds necessary to get Osita the electric wheelchair he so desperately needs. Your contribution, no matter the size, will make an incredible difference in his life.
Osita’s determination to overcome his challenges inspires me every day. An electric wheelchair would not only make his life easier but would also allow him to focus on the things that matter most—his education, his friendships, and being the amazing kid that he is.
Please join us in making this dream a reality for Osita. Together, we can help him move through life with the freedom and dignity he deserves.
Thank you from the bottom of my heart for reading our story, and for any support you can offer.
With love and gratitude,
Jenivive

