A future for Camila (SMA Medication)

Our daughter Camila is a 9-month-old lovely, bright girl who has been diagnosed with a rare disease called Spinal Muscular Atrophy(SMA). It is a neuromuscular disorder that affects the nervous system and spinal cord development which gradually weakens muscles, swallowing, and breathing.

This all started when we realized a sudden change with little Camila. She played less, kicked less, and seemed to hate everyone around.  With the sudden change in emotions and behavior, we immediately booked an appointment with the doctor. In the waiting room, Camila just looked fine to me with a happy, sharp smile on her face. Little did we know what internally haunted Little Camila.

Little Camila was diagnosed with SMA Type 1. Which is the most severe form of Spinal Muscular Atrophy. Without timely treatment, doctors say little Camila won't live for more than a year. This brought sadness and agony to our family and to innocent little Camila's life too. We don't wanna lose our lovely daughter. A little warmth grew within me when the doctor said a special kind of medication exists called Speranza and Zolgensma. However, we later found out this kind of medication doesn't exist in our country Uganda and is extremely very expensive. We have provided Little Camila with the best medical care and intensive treatment available in our country Uganda which is already costly to us. We have tried our best, worked our days and nights off amidst all the challenges of Coronavirus to secure a future for our little Camila but the money is too big for our limited brains and hands to afford. It's so much beyond our financial capabilities. This leaves us with no choice but to seek a hand of help hoping all the best for our dear Camila. 

It's at this point, We as the family come here asking for your help, prayers, and support to raise the money required for a life-saving medication for our daughter, Camilla


  • leom dona 
    • $5 
    • 10 d

Fundraising team (2)

Patrick Oketcho 
Norman, OK
Alid Cheb 
Team member

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