He had a high fever and was vomiting so his parents took him to his pediatrician. Unable to figure out what was wrong his pediatrician sent him to the emergency room. Yan then underwent a host of tests including a CT scan of his head.
Just 20 minutes after the scan, a doctor gave his parents life shattering news: your son has a brain tumor. That was October 3, 2008, the day his life changed forever.
Three days later, he endured a six hour surgery to have the tumor removed and biopsied. During surgery, doctors discovered that he actually had three tumors but only one could be removed. His cancer diagnosis was choroid plexus, which is very rare in children. His port-a-cath was placed and he remained in the hospital until the end of January, receiving the strongest chemotherapy available.
The next two years of his life consisted of long hospital stays and little time at home. After all the treatments, doctors told his parents on March 25, 2011, that there was nothing else they could do for him, and it was time to start preparing for his death.
His parents refused to give up and searched the Internet for treatment options and new hope. Finally, in August 2011, they found a doctor at Tufts Medical center in Boston who specializes in choroid plexus. Yan and his mom headed to Boston, leaving his dad, brothers and sisters behind. Upon arrival they were homeless for a few days until the hospital was able to help them find shelters and hotels where they could stay temporarily. His treatment plan would be two different oral chemotherapies seven days a week, Indefinitely, which meant he and his mom needed more long-term affordable accommodations.
In November 2011, Yan's mom found Why Me, A few phone calls later, the two of them moved into Sherry's house and started driving at least twice a week to Boston for a clinic appointments. His father and older brother, seven-year-old Jose, joined them, adding to the sense of strength and stability at Sherry's house. This support was needed, as he developed hydrocephalus and had to have a shunt surgically placed to relieve the pressure in his brain.
Despite all this he has been through in his short 4 1/2 years of life, he continued to smile laugh and joke. His condition has left him with long list of side effects, including hearing loss, muscle weakness, digestive problems, and a platelet disorder-but he hasn't let any of them get him down. He loves school, making new friends, and being a big help around Sherry's house.
He continues to take two different chemotherapies every single day, which are keeping his tumor stable. There is no end date insight for his treatment, why me and Sherry's house will be there every step of the way to support him and his family through their battle with childhood cancer..
We thank you from the bottom of our hearts for reading and sharing his story and for contributing to the never ending medical bills endured by his family! They are an amazingly strong family who deserve the world and should never have to watch their child go through what he's going through!
If you ever get the chance to meet this beautiful little boy, you will instantly fall in love as I did and will work tirelessly to make his life so much better. Thank you again, God Bless!!!
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