***Update 1/6/18*** Kyndall has graduated from PICU! She is no longer intubated nor sedated either!! Since the first of the year she has been progressing to the point of walking, and eating. She still has a VERY long road ahead of her with A LOT of therapy. We are still unsure of when she will be discharged from the hospital, but she is very much a warrior just like Wonder Woman, Diana.
Thank you to everyone who has donated. You smashed our first and second goals!!! Your donations have been beyond helpful.
Here is to the New Year of 2018. The year of many changes.
So how did Kyndall get to the PICU?
Friday December 15th Kyndall was doing great, told us about her classmates who were sick then a few hours later she herself vomited. Issue was she vomited many times but was able to get some sleep finally at midnight.
When we woke up the next morning, Dustin looked at her and though her eyes were open she wasn't saying good morning back. That was when things took a turn, had a seizure and we had to call 911 for help.
Medics arrived, quickly assessed her and did a great job to stabilize her enough that allowed her to go to the ER at Childrens about 30 minutes away. Once in the ER, all the doctors and nurses were amazing. It was a controlled chaos of checks, tests, history, and protective bubbles to help eliminate the current issues. Once the doctors felt she was ready enough to be moved to PICU, we were ready to move again.
Along the way, we stopped for a CT scan. This returned a normal result of her head and brain. Next stop PICU.
Many tests were ordered to look for a variety of different issues that could have caused her seizures. They also put sticky probes on her head that made her look like Professor X to look at her brain waves. This was her EEG. She did also have a ventilator put in to help her breathe. This is because she is sedated with the medication she is on, so she just needs some help.
Since her admission to the hospital our little girl has been through countless tests, biopsy, MRIs, EEGs, a valve in her brain to release pressure, IVIG, plasma exchange, sedation, ventilator to help her breathing, pneumonia, numerous blood draws, 2 central lines and a PICC line. Throughout this entire process she keeps fighting like the miniature Wonder Woman she is.
She is not aware yet of the time she has missed, that Christmas has passed or that the New Year is upon us. We are holding onto her presents that family has given us, and we plan on having a belated Christmas.
There have been a few people that have asked how they can help or asked if we can open this Go Fund Me to donate towards her journey. These funds would help us during our stay here, as well as medical expenses in the end but we also predict she will be in the hospital for at least a month after she wakes up. We will be looking to put these funds towards getting her appropriate therapeutic aids down the road as needed for her recovery.
Thank you in advance for any help that you may be able to provide. It is greatly appreciated.
If you wish to follow her story, you can do so on CaringBridge: Wonder Girl Kyndall's CaringBridge
Thank you so much,
The Schmitz Family
Kariann, Dustin but most of all our Wonder Girl Kyndall
- Christopher Portillo
- Jaclyn Buday
- McKenna Jodat
- Emmett Grissom
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