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Wesley’s Liver Transplant Expenses

Wesley received the gift of life for the first time when he was 11 years old due to Wilson’s Disease. When he was 18, his doctor informed him he needed to prepare himself because he was going to need a new liver within 6 months.   That was 20 years ago.  That six months is finally here.  Wesley is on the list and anxiously awaiting yet another amazing gift of life.

Wesley has been the primary financial support for our family for 6 years. He is an amazingly hard worker. He has always put his job ahead of his health. In agriculture, that means long hours, little sleep, inconsistent meals, and sometimes unforgiving environments.

We have three children-
Carleigh, 19, is working towards her Associates Degree at Illinois Valley Community College. She is doing amazing things and growing in to such an amazing young woman. We really couldn’t be more proud of her.
Clayton, 16, is in his sophomore year at PC. He is a member of FFA and currently works as a lifeguard at the YMCA. He is also a coach for the Novice level of the swim team.
Ayden is 7. He is in second grade at PC Primary. He is swimming on the Dolphin swim team this year. He loves playing outside, swimming, reading, and science projects.
I am entering my final semester of an Accelerated BSN program and had planned on finishing before Wes would need transplanted. Life didn’t work out how we had anticipated and Wes will need transplanted before I finish and start working.
I am working part time as well as going to school full time.

The average cost of a liver transplant in 2017 according to the Millman Research Report was $812,500. This whole process is very lengthy (180 days from pre--transplant testing to procuring the liver to discharge, and then the year long recovery at home) and very expensive.

Medical expenses to consider

Pre-transplant testing
Health care team fees
Insurance co-pays and deductibles
Postoperative care and rehabilitation
Follow up testing and care

Non-medical expenses to consider

Lost wages
Transportation to and from transplant center
Food for both Wes and I on travel days
Lodging close to transplant center before and after surgery

Yes we currently have medical insurance. We have a $4000 deductible and a $7350 out of pocket. We meet both of those yearly. Our insurance will assist with the bulk of the medical expenses (after deductible and out of pocket). It’s the non medical ones that are overwhelming us.

This GoFundMe account is very humbling for our family. We are the “figure it out” kind of people. But we have swallowed our pride at the urging of some friends/family and decided to open up and share our struggles and journey . If you can help financially, great. If you can’t- please share! You might know someone who can! If you would like to help in another way, we would appreciate that just as much! Helping run the boys to activities, housework, picking up some groceries, shoveling the snow this winter, or even just your continued prayers and emotional support! We appreciate every last thing. Sometimes it takes an army. Thanks for following our journey and make sure to share our campaign while we #WaitWithWesley
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Jennifer Koval-Dienst
Magnolia, IL

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