Help Trevor fight! N get a Service dog!
Donation protected
HI!
Trevor is 5 almost 6 years old, a happy, bouncy, loveably sweet little boy, a hero in his families eyes! with lots and lots of love to share, he loves giving hugs and high fives, and he loves to play with his play food, keys, and cell phone (play) and he loves having pockets! if u know trevor then u know what I mean! hehe
Trevor was born with non-immune Hydrops Fetalis at 38 weeks via emergency C-section, he was transferred to travercity hospital just 4 hours after birth to become stable enough to transfer to Helen devos he was in NICU for 20 days with ups and downs, he went back n forth from breathing mach ,c-pap, and oxygen, he had muti blood transfusions, at 5 months old he was diagnosed with congenital cataracts in both eyes, at 6m he had his first surgery to remove his lenses and lense implants was put in at 19months and he has had a total of 8 surgerys in both eyes with at least one more to come. and between then and now he has been diagnosed with cerebral palsy, epilepsy, right bundle branch block (heart) Autisic traits, brain damage ( thinning of the corpus calloisum) ataxia, sensory issues., he is delayed 1-2 years , his cerebellum has shrunk from perviouse MRIs and they continue to monitor that....he is a true fighter and he has not let anything stop him, and he does it all with a smile on his face, now just recently he was hospitalized for high ammonia levels and increased seizures his Nero doc thinks its a side affect of one of his meds which he has been on for a couple years now. If it is not his meds then they will look into a disorder called urea cycle metabolism. Defenstions are at the bottom. he is a mystery case! They say...he is unsteady at times, he falls easily so he now has a safety helmet for his ataxia and seizures , his speech is slurred at times ,takes him a bit longer to respond, or get what ur talking about sometimes, his behavior has gotten worse.... those are a few differences u will notice among others ..a year ago he got a major genetic testing done, very detailed, that came back with nothing, he also had a skin n muscle biopsy done which the muscle came back positive and they are waiting for the skin so they can pin point what the muscle is positive for.. well thank you for taking the time and reading all of this and all of your thoughts and prayers ..
We are trying to raise money to help with current and future issues that may come up, We are also trying to pay for training for his service dog.......
The cerebellum (Latin for little brain) is a region of the brain that plays an important role in motor control. It may also be involved in some cognitive functions such as attention and language, and in regulating fear and pleasure responses,[1] but its movement-related functions are the most solidly established. The cerebellum does not initiate movement, but it contributes to coordination, precision, and accurate timing. It receives input from sensory systems of the spinal cord and from other parts of the brain, and integrates these inputs to fine tune motor activity.[2] Cerebellar damage does not cause paralysis, but instead produces disorders in fine movement, equilibrium, posture, and motor learning.[2]
The optic nerve is located in the back of the eye. It is also called the second cranial nerve or cranial nerve II. It is the second of several pairs of cranial nerves. Although the optic nerve is part of the eye, it is considered to be in the central nervous system. The job of the optic nerve is to transfer visual information from the retina to the vision centers of the brain via electrical impulses
Trevor is 5 almost 6 years old, a happy, bouncy, loveably sweet little boy, a hero in his families eyes! with lots and lots of love to share, he loves giving hugs and high fives, and he loves to play with his play food, keys, and cell phone (play) and he loves having pockets! if u know trevor then u know what I mean! hehe
Trevor was born with non-immune Hydrops Fetalis at 38 weeks via emergency C-section, he was transferred to travercity hospital just 4 hours after birth to become stable enough to transfer to Helen devos he was in NICU for 20 days with ups and downs, he went back n forth from breathing mach ,c-pap, and oxygen, he had muti blood transfusions, at 5 months old he was diagnosed with congenital cataracts in both eyes, at 6m he had his first surgery to remove his lenses and lense implants was put in at 19months and he has had a total of 8 surgerys in both eyes with at least one more to come. and between then and now he has been diagnosed with cerebral palsy, epilepsy, right bundle branch block (heart) Autisic traits, brain damage ( thinning of the corpus calloisum) ataxia, sensory issues., he is delayed 1-2 years , his cerebellum has shrunk from perviouse MRIs and they continue to monitor that....he is a true fighter and he has not let anything stop him, and he does it all with a smile on his face, now just recently he was hospitalized for high ammonia levels and increased seizures his Nero doc thinks its a side affect of one of his meds which he has been on for a couple years now. If it is not his meds then they will look into a disorder called urea cycle metabolism. Defenstions are at the bottom. he is a mystery case! They say...he is unsteady at times, he falls easily so he now has a safety helmet for his ataxia and seizures , his speech is slurred at times ,takes him a bit longer to respond, or get what ur talking about sometimes, his behavior has gotten worse.... those are a few differences u will notice among others ..a year ago he got a major genetic testing done, very detailed, that came back with nothing, he also had a skin n muscle biopsy done which the muscle came back positive and they are waiting for the skin so they can pin point what the muscle is positive for.. well thank you for taking the time and reading all of this and all of your thoughts and prayers ..
We are trying to raise money to help with current and future issues that may come up, We are also trying to pay for training for his service dog.......
The cerebellum (Latin for little brain) is a region of the brain that plays an important role in motor control. It may also be involved in some cognitive functions such as attention and language, and in regulating fear and pleasure responses,[1] but its movement-related functions are the most solidly established. The cerebellum does not initiate movement, but it contributes to coordination, precision, and accurate timing. It receives input from sensory systems of the spinal cord and from other parts of the brain, and integrates these inputs to fine tune motor activity.[2] Cerebellar damage does not cause paralysis, but instead produces disorders in fine movement, equilibrium, posture, and motor learning.[2]
The optic nerve is located in the back of the eye. It is also called the second cranial nerve or cranial nerve II. It is the second of several pairs of cranial nerves. Although the optic nerve is part of the eye, it is considered to be in the central nervous system. The job of the optic nerve is to transfer visual information from the retina to the vision centers of the brain via electrical impulses
Organizer
Roxie White
Organizer
Trenton, MI
