TommyJ "Papi" Funeral Fund

Hi my name is LaVerne Castillo and I started the Baby TommyJ Fund on behalf of my sister Liana and brother in law Tommy Solis. My precious nephew TommyJ was born 3 months premature by emergency c-section on October 24, 2014. My sister Liana started to experience decreased movement and heartrate decelerations. He was born weighing 1 lb 15 oz. and was 13 inches long.  Due to his condition, he was flown to St. Joseph's and later transported to Phoenix Children's Hospital. Since birth, TommyJ has had 12 serious surgeries. TommyJ had a grade 1 intreventricular hemorrage, which has since been resolved. At birth TommyJ was diagnosed with Congestive heart failure, which was being caused by a Hephatic Arteriovenous Malformation and a coil embolization was performed in his liver. On 12/04/2014 TommyJ was operated on the right diaphragm which a plication was done. On 12/09/2014 TommyJ was beginning to show signs of infection and severly swollend in the abdomen. TommyJ was Diagnosed with Necrotizing Enterocolitis which caused him to have emergency surgery and have temporary ostomy placed until his intestines are able to heal. This was a very scary and critical illness for us as a family, only 2 out of every child diagnosed with this survives. TommyJ started to show positive progress with his stats increasing, and  is showing positive signs that he still fighting this battle. TommyJ was able to be extubated from the ventilator and placed on NIPPV (CPAP) which lasted for 10 days. Unfortunately TommyJ developed a raging UTI which sent him into renal failure and had to be put back on the ventilator. The UTI infection created stress which sent him over the edge and caused his body to go into shock and stop sending blood to less vital organs.   Dr's made the decision to place him on dialysis to help his little body recover. On 1/25/15 the family was given horrifying news that TommyJ need to placed on Ecmo (heart and Lung bypass machine) his heart was working to hard causing hypertension and over stressing him.  His heart was not able to push enough blood to kidneys for him to be able to get rid of his fluid and was sending him into to acidosis stage. TommyJ was on Ecmo for 5 days, and fortunately was able to recover slowly and was also placed on a medication that he would have to take for a really long time for the hypertension.  After several attempts to be extubated Dr advised us that TommyJ  lungs had BPD (Bronchopulmonary Dysplasia) chronic lung disease. The cause was being on the ventilator for most of his 4 1/2 months of his life.  On 3/4/15 TommyJ after several attempts of the ventilator had yet another surgery this time to have a trach placed this was to give him a direct source of breathing so that he would be able to grow and eventually come home.  TommyJ was doing very well was placed on a vitamin and medication regimen that was working perfectly for him. TommyJ needed to have his ostomy reversed so on 4/10/15 he underwent surgery he did very will during the procedure, and for the next few days.  TommyJ little body after being taken off medications for surgery, and the stress of it all his heart could no longer hang on. TommyJ along with his parents and family by his side passed on 4/19/15 a day we all will never forget.  This has been a very trying time for his parents and we would like to give some more financial support in their time of need. We are asking that you please donate any amount you can to help. We are extremely grateful for all the love! Please continue to keep TommyJ in your hearts and prayers! Thank you!

Donations

  • Ayshen Gazovali 
    • $10 
    • 62 mos
  • sumita nair 
    • $150 
    • 62 mos
  • Beaty Family 
    • $80 
    • 62 mos
  • Tiffany Arguelles 
    • $100 
    • 62 mos
  • Laurie Vallarian 
    • $30 
    • 62 mos
See all

Organizer

LaVerne Castillo 
Organizer
Chandler, AZ
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