They were blessed with a beautiful healthy baby. In a couple weeks home they noticed signs of silent reflux symptoms, which his pediatrician agreed with and started him on medication.
In his first month he gained weight and appeared to be the picture of health. At two months he had his first vaccinations and did so well they took him for his first visit with Santa Claus afterwards. A day or two after his shots they noticed he just was not acting like himself.
This is when their nightmare began. In the early morning hours of December 22nd after changing his diaper Taylor noticed blood in Beckett’s urine. They called his on call doctor and were told to take him to the local ER. The physician on call thought it might be a UTI but by the grace of God decided to take an X-ray. They noticed that his heart might be enlarged and decided to send him to Arnold Palmer Children hospital in Orlando. On the way in the ambulance Beckett went into respiratory distress. Paramedics were able to start oxygen right away. If they had decided not to take him to the ER this would be another story.
They were so lucky to have the best team at Arnold Palmer. Beckett was whisked away and the next time they saw him he was in ICU, incubated and hooked up to many machines. An echocardiogram confirmed his heart was extremely enlarged. They were able to stabilize him and then decided on the second day to airlift him to Shands Children Hospital at the University of Florida in Gainesville. Because of bad weather they were unable to fly and would transport him via ambulance. After hours of waiting and having issues with the portable vent they arrived at Shands at 3:00 AM.
Shands has the most up to date Congenital Cardiac ICU. Beckett has a team of doctors who work around the clock to keep his heart pumping and trying to understand why this happened.
Beckett’s diagnosis is Cardiomyopathy, origin unknown. There is no cure for this condition he has, but there is hope with a new heart. Beckett is on the National Registry listed as 1A waiting for a new heart. Today he is undergoing surgery for a mechanical heart, which he will need until a donor heart is available.
Insurance will be covering most of the expenses of the surgery, however the deductable of $6,000 must be met first.
Right now there is a baby boy going through surgery and he needs our help. The emotional toll is heavy and as you can imagine the financial burden is intense as well. Let’s show this family they are not alone. They have a whole Chive Community behind them and we are here to help.
It’s still going to be a challenge, but with the help of YOU Chivers, it just might be a little easier.
DonationsSee top donations
- Lisa Elsenpeter
- Shaun Rudicil
- Kevin Krohn
- John Foy
- Wendy Young
#1 fundraising platform
More people start fundraisers on GoFundMe than on any other platform. Learn more
Expert advice, 24/7
Contact us with your questions and we’ll answer, day or night. Learn more