<div>On Feb 20,2024, Our son Stamwulf, who we call 'Stami', suddenly fell unconscious while asleep, after not feeling well the day before, and was rushed to the local emergency room, where doctors decided to take him by life-flight to Sunrise children's hospital for emergency treatment, not knowing what was happening to this otherwise happy, healthy six year old who had only been sick with a cold one time in his life, and that was several years before. After being put into a medically induced coma in order to intubate him on a life support ventilator, doctor's ran so many tests over the next few days, it was hard to keep track of them all: spinal tap, MRI, CAT scan, blood tests, viral and bacterial tests, etc.
</div>
<div><br />
</div>
<div>After almost a week, we received the devastating news that our son had massive swelling of the brain and spinal cord, a rare but sometimes deadly condition called '<em>Acute Disseminated Encephalomyelitis'</em> or ADEM, is an immune-mediated, inflammatory, monophasic, demyelinating condition that affects the white matter of the brain and spinal cord. As a rapidly progressive post-infectious encephalomyelitis, ADEM is characterized by demyelination in the brain and spinal cord
</div>
<div>as a result of inflammation following infection or immunization.
</div>
<div><br />
</div>
<div>How could this happen? our son was perfectly healthy the week before, helping other students in his class with reading and playing Minecraft at home in his free time. The only un-routine thing being the recent vaccination shots he received prior to getting sick.
</div>
<div><br />
</div>
<div>A quick Google search revealed the truth...this devastating condition is either triggered by a viral / bacterial infection right before hospitalization, or a recent VACCINATION.
</div>
<div><br />
</div>
<div>With no response to known treatments, Stami was again taken by life-flight, this time all the way to Utah, to primary children's hospital, a level-one trauma center with the best specialists in this part of the country, to undergo the last chance to save him, a process called 'plasmapheresis' where the blood is taken from the body and filtered, then returned with new white blood cells, to try and get the immune system to fight with, instead of against, our little boy. He would receive five rounds of this therapy, while being continually tested for every possible viral and bacterial infection on earth.
</div>
<div><br />
</div>
<div>In the hours after receiving the first treatment on Feb 29th, our son started to open his eyes and was looking as if he was going to come out of the coma he had been in for several weeks by that time.
</div>
<div><br />
</div>
<div>Unfortunately, late that night, our son's heart stopped after being thrown into an erratic pattern that was present for several days before. He was immediately given CPR and other life-saving measures for several minutes. They were able to bring him back and get him breathing again, and also discovering the cause of the erratic heart rate...the pik line in his carotid artery, for the plasmapheresis treatments, was too deep and was touching his heart. After correcting the position of the line, his heart rate went back to normal, but he now had a collapsed lung and would require several breathing treatments daily in his ventilator to repair the lung.
</div>
<div><br />
</div>
<div>Tests continued, but with no visible improvement, doctors told us our precious 6 year old had severe brain damage on the MRI and would not likely ever recover...he was brain dead. We discussed the options of donating our sons body parts, so another child could live on through him, but quickly decided that being completely paralyzed, the only sign that he could give us, a single tear to the corner of his eye when we talked to him, was enough for us. We informed doctors that we believed he was 'in-there' and was not brain dead...he just couldn't communicate with us all.
</div>
<div><br />
</div>
<div>Doctors decided to hold a conference with us to explain the severity of his condition, maintaining that his condition was that he would pass if removed from life-support. It was agreed that we would meet in one week to see what direction to go, as understandably, the hospital could not just keep him on life support indefinitely, in the Intensive Care Unit, which
</div>
<div>receives critically injured children hourly from several surrounding states by life-flight crews.
</div>
<div><br />
</div>
<div>In what can only be called sheer determination and a will to survive, Stami started showing everyone that he was absolutely in-fact, trapped in paralysis, but fighting his way out. What started as a mere movement of a muscle in his chin, became a mouth moving, an eye twitching while closed, him sustaining his heart rate without the atropine that doctors thought he wouldn't live without, many more tests, to the CDC and groups of the country's top experts looking at his case, stumped at his presentation of what they had never before seen...a child without a clear diagnosis, showing symptoms of several forms of ADEM, AFM, AHERN, etc...but against all odds, fighting harder than could be imagined from a small boy so critically ill.
</div>
<div><br />
</div>
<div>On March 26,2024 after going in for a full body pet scan to rule out cancer, and a full body MRI, Stami returned to his room at an alarming 34 degrees Celsius, so cold to the touch that he felt frozen..he was immediately put into a bear-hugger device to try and bring his body temperature up to normal. As we all stared intently at the monitor, showing his core body temperature, which only went up 1 degree after 20 minutes, everyone was astounded to look down and see that Stami had opened his eyes for the first time...this was the beginning of his next journey, getting one facial nerve back after another, as his body repaired the myelin damaged nerves, brain stem and spinal cord.
</div>
<div><br />
</div>
<div>Stami is still in a coma-state, able to open and close his eyes, and communicate through facial movements, but is still paralyzed from the arms down, has a tracheotomy / ventilator, feeding tube, etc.
</div>
<div><br />
</div>
<div>There is a long road ahead for this little dude, but he is showing everyone that he isn't giving up, and fights harder everyday to get out of the prison he's in.
</div>
<div><br />
</div>
<div><strong>UPDATE:</strong> Stami is currently waiting for a bed back in Las Vegas at a long term rehabilitation center, but will face several years of intense therapy to return to 'a normal life'. Our goal is to bring him home so he can be with his 3 brother's, where his dad will care for him daily and his mom will be going into a RN program.
</div>
<div>The future expenses for us related to Stami's care include specialized transportation, medical bed, ventilator, doctors appointments at various hospitals around the country, and numerous other costs not covered by insurance. We have no idea what the true amount will total, but surely in the hundreds of thousands (not including current hospital bills which are astronomical)...we are seeking only what we foresee as the cost to bring him home from long term rehab to be with his family 24/7, as the rehab only has visiting from 8am-8pm, which is going to be very challenging with a toddler and 2 other kids in-school.
</div>
<div><strong>ANYTHING</strong> is truly <strong>EVERYTHING!!! </strong>We are hoping Stami's story reaches millions of people and that collectively we can cover these costs..there is no amount too small..$5 is gas, $10 is diapers, $20 is nutritional formula, $100 is a used wheel-chair.
</div>
<div>And above all, please keep Stami in your prayers, as he can use all the good energy we can give him.
</div>

Tomas Sallvin

Anonymous

Nataliia Lessman

Lorena Mendez

Jennifer Crowell

Chelsi Bates

Julie Bingham

Holly Fausz

Eric Riggs

PAMELA BAILEY

Shellie Gahagan

PLEASE HELP 'STAMI' FIGHT ADEM

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

currencyCode

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

writePath

Stream Notification

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

Influencer - Prod

US fundraisers and US users

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

userCurrencyCode

Localized Currency

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

PLEASE HELP 'STAMI' FIGHT ADEM

Still $82,315 to go. Help us build momentum.