A Benefit for Sweet Morgan Loken

This site was created for friends, family, co-workers, and other caring supports who are NOT able to attend the benefit and would still like to make a credit card donation. This is from her caring bridge Journal: Morgan and her twin brother, Madden, were born prematurely at 34 weeks. Morgan was diagnosed with Down Syndrome at birth. And this is where Morgan's journey began:  As with many children with Down syndrome Morgan had heart defects, including a VSD and a PDA. Her VSD resolved on its own. Her PDA required surgery to close. Morgan has had persistent difficulties with weight gain and growth. In addition her eye lids did not develop properly, which made it impossible for Morgan to protect her eyes. Surgery would be required to ensure her ability to maintain her vision. On December 22nd Morgan started having seizures at home. We brought her to Childrens hospital. After testing, she was given a diagnosis of infantile spasms. It was so hard to watch our baby lose five months of development in two days. She was treated with ACTH, a very expensive and specialized medication with significant side effects. We were discharged home a few days later with Morgan needing injections of this medication twice per day. The medication was working to stop the spasms, however on January 2nd while in Brainerd Morgan had to be ambulanced from Brainerd to Minneapolis children's due to extremely high blood pressure.  On January 9th we were given great news, Morgan's seizures had stopped. Then on January 15th shortly after going to bed Morgan suddenly started having difficulty breathing. We called 911, oxygen was administered, and Morgan was ambulanced once again to Children's.   On January 28th after three days of poor eating and needing oxygen when she was sleeping we brought Morgan to the ER at Minneapolis Children's. She was admitted to the hospital diagnosed with a virus, pneumonia, and dehydration. She was stable for one day, then went down hill fast. Around 8:15 am on January 30th she suddenly had difficulty with breathing and a "code" was called. More than fifteen people rushed her hospital room and immediately started helping Morgan. She was rushed down to the PICU and was intubated and put on a ventilator. Her little body had worked so hard, it just couldn't do it anymore. She remained intubated for 10 days. On Monday Feb 4th, 2013, Morgan had surgery to repair her PDA. This is where our journal begins. Everyone who meets Morgan says how sweet she is! We couldn't agree more. This site is for you, our one and only Sweet Morgan. Donations will all be given directly to Meagan and Doug to help cover expenses incurred during this time.