Support Silas/Wheelchair accessible van

In April of 2011, after experiencing several seizures, Silas was diagnosed with a rare genetic disorder that affected the development of his brain. The condition, known as Lissencephaly, (which literally translates to "smooth brain") causes many types of seizures, developmental delays, along with swallowing and respiratory problems. Over the last two years he has been hospitalized many times for respiratory infections, and has had countless doctor appointments. Through it all Silas stays the happiest child you have ever seen, always smiling and giggling he lights up every room he enters, and inspires everyone he meets. After his diagnosis, Silas's seizures have been well controlled by his medication, with only a couple more episodes since his diagnosis. With the seizures under control Silas has developed and progressed much quicker than before his diagnosis. He can now roll over with ease, scoot around all over the house, plays like crazy with his toys, holds his own bottle, and is getting close to sitting up. Though his development is slow, it is nothing short of amazing considering his initial prognosis. Silas, now nearly 3 years old, relies on a wheelchair for mobility. As he has gotten bigger, stronger, and heavier it has become much more difficult and dangerous to transfer him in and out of his wheelchair as he does not physically help you, and likes to throw himself back. He currently uses a car seat in the family vehicle, but is quickly outgrowing it. We have started this fundraising campaign to help with the purchase of a wheelchair accessible van that will allow Silas to simply ride in his wheelchair, a more convenient, comfortable and safer option. Thank you for your support! For more information on Silas you can visit these links:

Silas's Caringbridge site shares his entire journey through journal updates from his parents starting the the day of his diagnosis:

http://www.caringbridge.org/visit/silasb


Silas's new Facebook page contains more pictures, updates, and news about fundraising efforts:

www.Facebook.com/SupportSilas

The following link is to an article about Silas that was recently published in our local newspaper:

http://www.fairmontsentinel.com/page/content.detail/id/525207/Silas-surprises--inspires.html?nav=5003


For more information on Lissencephaly:

Wikipedia.com/Lissencephaly

NINDS.gov/Liss


Silas VERY excited playing his piano:

Donations

  • Benefit $$$ 
    • $10,000 (Offline)
    • 90 mos
  • Anonymous 
    • $10 
    • 91 mos
  • Off-line donations 
    • $5,000 (Offline)
    • 94 mos
  • Justin Huemoeller 
    • $10 
    • 96 mos
  • ashley perez 
    • $14 
    • 97 mos
See all

Organizer

Kelsey Borntrager 
Organizer
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