What an amazing strong young man Tyler is! He's endured more in his short life than many people can possibly handle. On top of his lifelong disabilities, he recently has had to deal with some medical setbacks that are currently undiagnosed and has kept him hospitalized for over 2 months so far. Each symptom is being treated separately to help keep him medically stable. One new thing to get used to is his g-tube (feeding tube) which is helping nourish him & keep him healthy. To top off all these "new" medical issues, his most recent surgery took place on 4/10/17. He had bilateral hamstring lengthening, which was very successful, but due to being hospitalized so long with other things, it hindered his recovery. He is now unable to stand or walk. He's working very hard with OT & PT to gain enough strength to do this just enough to help with his overall care. With all of his surgeries the passed several years, Tyler has become more and more physically fragile and doesn't navigate well outside of using his wheelchair. That said, we are in desperate need of creating a completely handicapped accessible room/suite in our home on the main level ASAP!! It will include everything he needs for his care, including a completely handicapped-equipped bathroom. We are also facing many upcoming continued expenses for doctor appointments (wherever we may need to go) to still continue testing for the diagnosis of his new conditions (which seem to be metabolic). Also, we've come to the realization he may be completely wheelchair bound for an indefinite timeframe and we will most likely need a wheelchair ramp built. Some of the equipment he needs for his care is also not covered by insurance!!
We as a family always find joy in helping others and dedicate time each year to volunteer or help where we can, it is very hard for us to say "we now need that help."!!!! TYLER NEEDS YOUR HELP!! Please find it in your heart to donate even $5 to help us get this special space built for him and any necessary equipment needed/expenses he may incur going forward. Thank you on his behalf & from the bottom of our hearts! Much love and many hugs to you all!!! #teamtyler