Hi, my name is Sofia Grace, and I was born last April with Spinal Muscular Atrophy (SMA Type 1). SMA is a genetic disease that makes me weaker as I grow bigger. My chest wall muscles are too weak to expand all the way, so I have trouble breathing on my own. I may soon have trouble swallowing and digesting my food with weakening digestive muscles and won't be able to smile or talk if the muscles in my face give out. The doctors say I will never sit up on my own, crawl, or walk. You see, despite all my health problems, my mind will always be like everyone else's. In fact, we SMA kids are known to be very bright! There is no cure or treatment for SMA, but they are working on it! In the mean time, I have lots of doctors monitoring my health and trying to keep me comfortable while I wait. It would be a big help to my mommy and daddy to have a little help paying for my medical bills and all the equipment I need. If you want to know more about my daily life and journey with SMA, you can also see my Facebook page Saving Sweet Sofia for regular updates.
To learn more about SMA, please visit www.curesma.org