Be Brave: Choosing to Love

Imagine you find out you're pregnant. You, like many others, start to day dream about your new life and the life of your future family. Watching them play at the park, their first day of school, or maybe even their wedding. No one ever imagines that happy day ending with the news that you will not have any of those things.
According to http://rhizokids.com/ :
:

“The official scientific description is as follows: RCDP is an autosomal recessive form of chondrodysplasia punctata characterized by defective plasminogen biosynthesis and impaired peroxisomes. Patients have shortened proximal limbs and severely disturbed endochondral bone formation”

The website goes on to tell us: “According to a study by the Kennedy Krieger Institute 60% of children survived the first year, 39% the second year, and a few survived beyond age 10.”
Rhizomelic Chondrodysplasia Punctata (RCDP), to put it simply, is a rare and lethal form of dwarfism.

My goal is to create a documentary that brings awareness of this disorder to the general public.  The idea is that by connecting real people (moms, dads, siblings, and supporters) to an otherwise little known disorder awareness will increase along with funding for treatment research, and support for these families.

After the film is made, 85% all revenue will be donated to support RCDP families and to further research.

I have several families that have already agreed to be involved in making this film. With your help we can bring awareness to this devastating disorder and perhaps eventually save these precious children.

Use of funds
· Update current equipment in order to allow this documentary to be shown in the greatest number of venues
· Cover traveling cost (gas, food, hotel as needed)
· All funds earned here that is not used for the above will be donated to support these families

Donations

  • Anonymous 
    • $3,000 (Offline)
    • 49 mos
  • Melanie Golightly 
    • $10 
    • 50 mos
  • Renate Dowdy 
    • $100 (Offline)
    • 50 mos
  • Anonymous 
    • $10 
    • 50 mos
  • Kelsey Remmelts 
    • $100 
    • 50 mos
See all

Organizer

Melody Jaynes-Bickham 
Organizer
Denton, TX
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