Our beautiful son Owen was born on August 26, 2011. He shares his birthday with his dad and his heart of both of us. Unfortunately, on November 13th 2011 he suffered from a pediatric stroke that caused brain damage to his right frontal lobe. After the stroke we were told that Owen may not be able to walk and would likely lose the majority of movement in his left arm and hand. Owen was working hard to prove them wrong. Attending physical and occupational therapy, Owen began using his hand to show the doctors that he is too stubborn to listen to them.
On January 27th, 2011: Owen went in for a EEG to see how he was progressing since being taken off one of the many medications he is on. During that time we found that Owen was having infantile spasms. Infantile spasms are an extremely dangerous kind of epilepsy that is often linked with developmental issues. Owen now has the tough job of going through a diet and steroid regiment in addition to all of the other work he was already doing. We are confident that Owen will once again beat the odds and show us how tough he his!
That being said, spending a lot of time in the hospital and having so many different types of care can start to get extremely expensive. A lot of folks have asked how they can help. We are accepting donations to help us pay for Owen's expenses. We will use this money to help pay for his medical care and any ongoing care he may need in the future.
We plan to donate anything that is left over from the amount to Children's Hospital and CHASA on his fifth birthday.
** As a note, any donations are not tax deductable and are considered the same as a personal gift from a tax perspective.
Below are some links to more information:
- Dot Hurley
- Nancy & Jim Berrien
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