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NIAYAHS FUND

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After the sad passing of Niayah Crack, aged just 2, from stage 4 Neuroblastoma cancer on the 27th October 2014, Niayah's fund has now become a not for profit official organisationNiayah was sadly diagnosed with neuroblastomia cancer just before Christmas 2013, aged just 1, the family's world was completely torn apart. Niayah began her long fight against this devastating cancer. Doctors at Birmingham Children's Hospital began their treatment path, with Niayah receiving high dose chemotherapy and a stem cell harvest & transplant. Considering all this treatment, Princess Niayah, though poorly saw through everyday with a fight and lots and lots of smiles- she stole the hearts of the medical teams, fellow patients and the public. Sadly, after many complications in her treatment, Niayah passed away,  breaking the hearts of her parents, sisters, family and friends. Niayah will be forever in the hearts of those who were touched by her smile.
Neuroblastomia – The Facts
Less than 100 children per year are diagnosed with neuroblastomia in the UK
Most of these children are under 5 years old
Neuroblastomia makes up 8% of all childhood cancers
It is a cancer of the nerve cells
 reoccurance of further cancers is high.  Niayah's fund are now proud to support Dr Francis Mussai at his laboratory in birmingham uni , ( mussai laboratory) currently working on research into neuroblastoma showing promising results. Identifing neuroblasoma's impacts on the immune system. identifying how cells work with and against neuroblastoma. We as a organisation will donate 50 % of what we raise to support this research

As we have always maintained without research this horrid cancer will keep taking beautiful children's lives just like Niayah. Sadly so many children we have known along the way.

Niayah's fund will help Secondly by using the other 50% of funds to provide support for children battling neuroblastoma both currently and relapsed ( sadly this we know happens far to many times) We also want to support families with the practical help for example children's uniforms, unpaid bills, cost of living while at hospital, useful equipment , days out , creating precious family moments.

Not forgetting the families left behind like ourselves. Who have had the hearts torn out of there whole family, suffering the loss of a child. We want to remember them and help them to rebuild after this and offer practical and financial help.

Lastly the siblings who have to go along this whole journey we aim to give focus on these unsung hero children. Who cope, go to school and stay so strong while they watch a brother or sister go through so much. often having to live from one place to another. we intend to give them the recognition they rightly should have. ( our girls have been without a doubt humbling and totally awesome)

Niayahs fund is not just about Niayah its about every brave child, every super strong family fighting . We never think cancer will happen to us not our kids... i thought the same it is happening and we can and will make a difference, your help big or small is always a blessing we cannot do it without your fantastic level of support,
love to each and everyone of you x
6/12/14·..............................................................................8/12/14http://www.coventrytelegraph.net/news/coventry-news/radford-family-set-up-niayahs-8236720 .........................................................The word cancer is cruel it breaks the heart of so many, having been told our princess has cancer has rocked us to the core. We are in the mist of treatment for her and hope and pray it works. Seeing first hand just what a horrible thing neuroblastoma is :(. We have to do all we can to give Niayah th

best chance to live. This page has been set up for those wanting to give to Niayah. The money will go to fund life saving treatment that the uk does not offer ( any medical needs travel costs or items she might need , should the worst happen towards the cost no parent should never need to think about :( a beautiful resting place. Treatment outside of the uk which could very well save our pricesses life. Some of this the uk cannot fund so if she is to have any of this we must fund it ourselves. we cant give up on her she has fought so hard already. So if she does relapes we have made a start and getting her what she needs. ( we pray to God she never needs this fund) should she not need it,  all be donated to ward 15 birmingham children's hospital ( once we have raised over ten thousand pounds as we have already raised over ten thousand for the ward direct .to help other children with the fight of there lives along with Niayah.  Ronald mcdonald house birmingham who have kept up together as a family , Last but not least  to fund neoroblastoma research because to many children are battling this and we need to find a cure.You can do your own thing be it head shave, cake sale at work ,school, car wash, 5 mile walk, charity football matches, teddy bears picnic, pub crawl with collection buckets in fancy dress the possiblities are endless. get a tatoo , be gunged  , where what you like to school/ work day. i dont like to beg but i am not bove begging if it gives niayah OUR baby girl a chance. so i beg each and everyone of you, print this page off take it to work school, ask them can they / you help. Every penny really will help big or small...  those who have asked  how can we help this is it :)  this is the perfect way to all join together for our beautiful baby girl. Who is being such a brave brave brave girl one day at a time god willing prayer lot

s and lots of talking to the man upstairs guys x. So you guys the clocks ticking fb page set up  and fund page and account  ready .... steady......GO

Organizer

Evette Crack
Organizer

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