Back in the middle of June I experienced something called a Priapism, basically a painful erection that wont go down. I went to A&E and they tried to treat it, however not successfully. They tired aspiration, blood thinners and finally surgical shunt.
In the months following and through speaking to other doctors, I have found that they did not really know what they were doing and it turns out they just "had a go". In their attempts at surgery they caused severe nerve damage.
As a result I am now left with a mutilated penis, a numb tip, the inability to get an erection or achieve orgasm, random shooting & burning pains and penile fibrosis. I have tried going through the official channels but just get fobbed off by the NHS and each department seems to blame another department. I have raised informal complaints, formal complaints and taken this to the ombudsman. But the NHS have yet to take responsibility for their errors, and instead seem to take 6-8 weeks to respond to me.
I have found a few treatment options; vascular reconstruction, nerve reconstruction and penile reconstruction. All options which the NHS should be offering me, however the current treatment plan is to prescribe Viagra and "see how things go". I am planning to see a specialist at Ghent university hospital at my own expense, the NHS are not forthcoming with any help whatsoever.
The other treatment option is still in the experimental stages, however it has shown promising results in all human trials which have been ongoing since 2009. I have tried to reach out and participate in these trials, however they are fully subscribed. The treatment is using my own fat derived stem cells, injecting them into the affected areas of the penis and allowing my body to regenerate the damaged bits of my penis. I am planning to see a specialist at a state hospital in Munich, again at my own expense as the NHS are not forthcoming with any help.
I have been living with this for almost 4 months now, trying to get help and get the treatment I need to get back to a normal life through the NHS, the health service we pay our taxes and national insurance for so that when we need them, they are there to help us swiftly and professionally. It is taking its toll on me mentally as well as physically. Being a 26 year old and otherwise healthy male, I am really struggling to deal with this and would like to be cured sooner rather than later. Going from having a healthy sex life to no sex life is devastating and is taking its toll on relationships. It is most definitely not easy living with this dark secret that I feel so ashamed of.
I don't like the idea of asking people for money, I'm pretty independent and like to try to solve things myself. However I have no other way to pay for this treatment other than to ask for help. I have my life savings going towards this, but I just need that little extra in order to be able to pay for everything.
If you are able to contribute it's really appreciated, you have no idea how much it would mean to me. Every penny helps get me a step closer to being able to pay for treatment. I am saving where I can and trying to contribute as much as I can, but it seems I can not raise all the funds without the help of others.