My accident was difficult enough 12 years ago, but over time I learned how to adjust to being disabled. What I have not yet been able to accept is my delibitating neurpathic pain which is 24/7 and in the entirety of my lower body. To say that it effects my daily life would be an understatement as it rules everything, from how long I can sit and socialize for, to the fact that now I am on the highest pain medication regime to little avail.
I have suffered enough, from my initial surgery that implanted a titanium cage around my spine and took a peice of my rib as a replacement for my shattered vertabrae. One year later I flew to China for daily stem cells, and grueling phyisical therapy. The year after I went even further and one month into my Chinese stay I had a decompression surgery, and flew home one week later. I was in so much agony that I had to be medically taken off the plane, when I arrived home that evening I felt so ill that I went to the emergency room. Fearing a Chinese illness, they quaratined me for a week, all the while not knowing how to care for my condition.
I have been placed on medications, and been put through opiod withrawal at least twice. The myriads of medications now do little to treat my pain. Pain management doctors have not even tried to research past their current treatment protocals to what potentially could help me.
For those of you who know my story, you may remember my two attempts at recovery by going to China for stem cells. Yes, I fundraised for one third of one treatment, and have felt mixed feelings about the fact that treatment did nothing, and to those who gave helped with funding, thank you.
Well, my research into neuropathic pain management has been the most complex and tiring research project I have ever done. It has led me to several pain management doctors in Ontario and Quebec who have all said they can do nothing for me. I have discovered, by doing online research, recent medical journals advocating rTMS (repetitive trans-magnetic stimulation), a treatment for neuropathic pain which is presently being offered abroad and at a hospital in Boston, but not yet, in Canada.
Therefore, to receive this therapy I have to travel to Boston for a month and perhaps longer in order to recieve 10 to 15 treatments, with each treatment costing aprx. $500. If my pain level would go down to a 5, I know my quality of life would improve!
- Sue Green
- Jonathan Paul
- Graham & Maria Beck & Hofbauer
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