Nacoale Needs Wheels

Hello, my name is Nacoale, age 32, and I was born with a rare bone disease called Osteogenesis Imperfecta. The disease has no cure and no known treatment. To learn more you can go to WWW.OIF.ORG

Basically it causes my bones to break very easily and makes doing a lot of things difficult. Things you take for granted on a daily basis, are things I have to struggle through just to finish them halfway. I usually suffer completely broken through fractures in my femurs or hairline pelvic breaks. I am only 4'3"and have a curvature of the spine that makes it tiring to walk long distances.  And by long I mean, from the parking lot to the store, or around the store itself. I've dealt with well over 50 broken bones in my lifetime, and had  4 major surgeries resulting in metal rods being installed inside my femurs for strength.  I have never really let this get in the way of me having a regular life. I get asked all the time about what it’s like being so short or what living with a disability is like and the response is, I have never known different. There are definitely some drawbacks to getting older and the disease becoming more pronounced due to Osteoporosis. I try very hard not to let it get me down or to wallow in self-pity. I try to live my life to the fullest and be excited for all the things I can do, not be labeled by all the things I cannot do.



I have levers installed in my vehicle so I can drive with my arms since my legs are usually my weakest link. Not only can I not reach the brake and gas pedal and still see over the steering wheel, but the pressure from using a brake pedal could cause stress fractures in my legs. Some of the simplest of things can cause me to break bones.   I was recently rear ended at a stoplight by a man going 50mph which shoved me into the two cars in front of me. This caused a 4 car pile up.  Not only did this total my car, it also broke my Pelvis and my Scapula (shoulder blade). The combination of the Handgears, Seatbelt, and Airbag hitting me all at the same time caused a usually stable bone to snap.

So lucky to be alive, but my life is put on hold. 
My poor Blue Bell, Totaled and Destroyed

I was completely bedridden for the first 6 weeks. It is definitely a lesson in humility to have to slow down what you are used to being able to do for yourself and have others do for you. I use my wheelchair daily, although I am able to walk and move about for small distances and within my home. When I am injured I rely on my wheels heavily. Even under my best circumstances I need some assistance getting from point A to point B.

Laugh through the tough times, My sister-in-law takes me to many of my Dr appts

 I own a standard wheelchair that I have had since high school. Good Old Arm muscles normally get me where I need to be, but since this accident I can’t even manage that. I can’t push myself in my wheelchair because I need two good arms to go in a straight line. Not only is this uber frustrating it is also very limiting. I need someone’s help just to get from my house to the driveway. From the car to the doctor's office. I am having complications with my Scapula fracture and most likely will need major surgery involving plates and screws and other metal bits to hold it all in place and with that news I realized my arm is going to be out of commission for quite a while. I will not be able to use the wheelchair by myself for weeks if not months. The older I get the longer the fractures take to heal and the worse the recovery and rehab are. This is only the second time I have injured my shoulder region and I am very concerned that it will affect my range of motion permanently, making pushing myself not only harder than ever before but extremely painful. That being said a Scooter would be a lifesaver. It would give me the mobility and independence that I need to live my life to the fullest at the touch of a button. Being able to keep up with my friends and family.


Only problem is that my insurance won’t cover the cost of such a life changing device and I cannot afford the cost of one out of pocket. I work full-time at a major retail store and don't receive disability or any other assistance from the government. I have been out of work since the accident, so about two months so far and with this major surgery looming over head I see a long recovery time ahead of me, meaning months, or even more of being out of work. 

I have many hobbies and interests, but among those are that I love costumes and dressing up. Two of my favorite past times are going to local renaissance fairs and Anime/Comic Conventions in amazing costumes I have put together. I like that I can express myself like this despite my disability. I feel like it makes a tiny difference if a disabled child, or any other person for that matter, sees me embracing my differences and celebrating them and doing what makes me happy. Maybe the world will stop looking at disabled individuals as people who cannot do for themselves, and more like people who do things differently. Without the aid of a scooter I believe I won’t be able to continue doing many things that I love to do, but more importantly the things I have to do on a daily basis. With the use of a Mobility Scooter I would be able to do things on my own again, injuries or none. It would improve my way of life and help me to continue being a contributing member of society.


Hanging with my Niece and Nephew on Halloween
Jokes on You...Handicapable
Cobblestone you will not defeat me
 My version of a superhero.

Friends help you through thick and thin


I want to Thank You from the bottom of my heart for looking at my donation page. Every little bit helps and it means alot to me if you decide to help me out.  Any donation at all would help. Spreading the link around wouldn't hurt my feelings either.



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Organizer

Nacoale Riley 
Organizer
Conroe, TX
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