My name is Mollie Chester, I am 19 years old and from Waterford, Ireland.
I had just completed my Christmas exams when I first experienced a headache followed by a high temperature. My mother took me to visit a doctor where I was prescribed an antibiotic. That following Friday I started my first real job. After my first day of work, I went to bed as normal and expected to wake up and return to work the next day.
I have limited memory of what was to follow during that night.
My Dad heard a noise which triggered him to come check on me. He discovered me mid-seizure in my bed and called an ambulance immediately. I was taken to the hospital alongside both my parents and by 3 pm the following afternoon I was in ICU (Intensive Care Unit) and two days later I was placed in an induced coma and on life support.
I remained in that state for two weeks.
Four weeks on, I was discharged home and spent five weeks seizure free when suddenly the seizures returned and showed no signs of subsiding. As a result, my parents then took me to Cork University Hospital where I spent a further six weeks in hospital undergoing several tests and treatments.
I was diagnosed with an extremely rare form of Epilepsy called NORSE (New-Onset Refractory Status Epilepticus). It is a condition characterized by the sudden onset of continuous seizures or a flurry of very frequent seizures. The condition is drug resistant and has no known cause or cure.
Daily I have up to four seizures and can never be left on my own. I went from a girl that loved to swim, play sports and hang out with my friends to becoming totally dependent on my parents. All throughout my life, I have dreamt of becoming a school teacher but now this dream and several others have had to be put on hold.
Day in, day out my family and friends are searching the internet looking for clinical trials and treatments that may enable me to achieve a better quality of life and hopefully find a cure for my condition. I have exhausted all available options in Ireland and will go to the Cleveland Clinic in the U.S. in February to receive further testing and treatment.
I have received breath-taking support and generosity from friends and strangers. I wish to thank every single person for their support so far and I want you to know that my family and I are eternally grateful.
As you can imagine the journey to find an explanation for my condition will be an expensive one and will need further financial support and generosity.
I am appealing to you to donate to my fund to help me get my life back on track and lead a normal 19-year-old girl’s life!
Thank you to everyone for the love and good wishes.
- M M
- Aoife Dullaghan
- Anonymous Anonymous
- Kayleigh Boyce
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