Matthews Decompression surgery



Early 2012 Matthew started complaining of muscle fatigue and weakness in both his legs. It wasn't until a predeployment vacation to Disney world when we noticed even in a fun atmospher, Matthews complaints were anything but normal. Summer 2012 we noticed Matthews back seemed bent as if he was standing in a back bend. The doctors said lordosis (abnormal curve in spine) due to tight hamstring muscles so his posture over compensated. Matty spent 3 months in physical therepy twice a week. He was release for his curvature was now in the normal range. Since then Matthews symptoms have increased. His eye sight became weak and he complained of spots like falling confetti. The optomitirist prescribed him glasses and said he had no floaters. He started experiencing headaches, tingling arms finger,leg, and foot pain. He would scream in fear he was going to drop his infant baby brother after holding him only a couple minutes. It wasn't until Matthew came home from school crying that something was wrong with him. He cried out,"mom I'm not like other kids in school, I can't even move my desk." I'd had enough! Finally with my husband away on his 4th deployment with the USMC infantry, I switched doctors. We were referred to a peidiatric neurologist. After a MRI was performed his results shocked me. Chair1malformaion. Followed by a C spine and cini flow, we learned that the back of Matthews skull is too small for his brain causing a downward pressure. the lower portion of the brain called the tonsils of the brain have descended out of the skull 14mm causing tightness around his spinal cord causing poor posterior spinal fluid flow. In efforts to relieve some of his symptoms Matthew will under go decompression surgery which will involve removing a piece of the skull . His neuro surgeon is in another state. He will spend 3-5 days in ICU being watched for infection and other complications. Currently I'm  a stay at home mother with four children as my husband is gone frequently on deployments or trainning schedules. This makes it challenging to meet the needs involved in our travels.  We're hoping our friends and family will help us to raise the funds we need for gas, food,and lodging for Matthews surgery. If you cannot contribute lift him in prayer place his name on every prayer chain you can and keep us all in mind. We thank you so much
UPDATE 08/14/2014
Matthews surgery is scheduled for this month. Sadly we were informed just how bad his chiari is. The tonsil tissue has died from being pinched off. He decompression surgery will include removing the skull around the chiari shaving off the dead brain tissue using a skin graff (his own) and shaving down his L1. He will be in the hospital for 5 days ! We will travel to georgia four days earlier than scheduled surgery for labs and preop! With pre, during and immediate post op, we will be staying in a hotel for almost 2 weeks out of state with all 4 of our children. Without your prayers and contribution we don't know how we would be able to stay with Matthew as a family. You must know how humbled an blessed we are for all of you. Those who have contributed spred the word to many folks who have and most important the prayer. All the thanks and glory goes to you God.m
  • genny diblasi 
    • $25 
    • 82 mos
  • Debbi J 
    • $25 
    • 83 mos
  • Angela Lorusso 
    • $75 
    • 83 mos
  • jeffrey gilio 
    • $100 
    • 83 mos
  • Leeann Balkcom 
    • $100 
    • 83 mos
See all

Organizer

Nichole Gilio-Craig 
Organizer
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