CCHS has many other complexities and requires continued understanding and education to help me and others to better cope with our condition. Thankfully there is hope! The CCHS Family Support Network hosts a Medical Educational Conference every 4 years where patients and families with CCHS can hear from medical professionals, gain education on the latest technologies, and gather support from fellow patients from around the U.S. and the world.
The 2018 CCHS Family Network Medical Conference will be held in St Louis, MO in June 2018 and I am seeking to raise funds to help offset the costs associated with attending the Conference. I hope you will consider supporting me in this endeavor.
Additionally, a portion of the money collected will be donated directly to the CCHS Family Network for further research on this rare disease. Please feel free to visit the CCHS Network . Contributions of any amount are greatly appreciated!
Thank you for taking the time to learn about the CCHS community and allowing me to share my story and my mission!
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