Wheels for Maddie

Children hold a special place in my heart, but especially my niece, Madison Daniels. Maddie was born with Pfeiffer Syndrome in 2005. It is a rare genetic disorder that prevents further growth of the skull. It affects the shape of the head and face but with Madison it also affects her elbows, hands and feet. The syndrome affects all aspects of her life. It takes away her ability to walk, have purposeful use of her hands (her elbows and knees are fused) and limits her ability to talk. She has various limitations and they have progressed over the years but that doesn't stop her nor her mom from making sure Maddie lives the most fulfilling life any 9 year old princess can. Despite having gone through more in her 9 years than most have in a lifetime she always has a smile on her face with a great sense of humor. She is currently recovering from a mid-face advancement, surgery number eleven but she is a fighter and recovering well.
      Although physically disabled Maddie is the light of her mother's eye. She not only brings joy, laughter and hope to our family but to everyone she meets. She is one determined little girl who likes her independence and with her new chair she has just that....INDEPENDENCE.
Maddie is growing up slowly but surely and as she is growing so are here needs. Her mom, my sister has been lucky to be able to lift her in and out of her old wheelchair into her car seat but Maddie has graduated to a big wheelchair...... a power chair weighing a little less than 300 pounds. So now instead of their small SUV they must graduate to a van. Not any van but a wheelchair accessible van. Wheelchair accessible vans are very expensive and we hope to raise funds to help alleviate the cost.
      Please share their story and a huge thank you for taking the time to read about a special blessing we have in our family. Any sacrifice you can make to help is greatly appreciated. God bless you as we have been blessed.

Donations

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  • Anonymous 
    • $200 
    • 55 mos
  • Kiki Broughton 
    • $10 
    • 66 mos
  • Kiki Broughton 
    • $10 
    • 67 mos
  • Kiki Broughton 
    • $10 
    • 68 mos
  • Kiki Broughton 
    • $10 
    • 72 mos
See all

Organizer and beneficiary

Dwynette Moffett 
Organizer
LaTresa Lizana 
Beneficiary
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