Feb 2011: Was finally admitted onto the Public system Neurologist waiting list in Cairns where I was assessed to have Relapsing/ remitting form of MS and was put on inject-able treatments. These were self administered every second day and I persevered with them for a year and a half. I was told that I would suffer flu like symptoms at first whilst my body got used to them and true to that, I did. However these did not stop and were so debilitating that they affected my work and my ability to function on a day to day basis.
Feb 2012: I suffered an attack of Optical Neuritis (common among MS sufferers) where I could only see double vision. I was treated with cortisone infusions for this over the course of 6 weeks. These made me very unwell also. Once again my work was affected. As a commercial analyst my job relied on computers and reading budget spreadsheets. I was constantly making mistakes and it several times longer to produce results just because I was constantly checking my work over and over for accuracy.
March 2012: I was sent a link to the Catalyst program which documented the CCSV trial done by Dr Thibault in NSW. This provided a new ray of hope for me. If this trial and treatment is picked up it will literally mean the end of MS for sufferers. The treatment targets the virus within the cells and systematically kills the MS cells. LINK http://www.abc.net.au/catalyst/stories/3572695.htm
It means I have to travel to see the doctor in NSW, in fact even the correct blood tests can't be performed in Cairns. I got an appointment to see if I was eligible for the trial in November 2013 and began treatment in December 2013.
Oct 2012: I suffered a very debilitating attack on my bowel which lasted over 12 months. In this time I could barely walk. I was in so much pain I was barely able to think. I had so many tests, endoscopy, colon-oscopy, you name I was referred for it. Nothing helped and with no relief in sight I cried constantly and became badly depressed. I was then referred to a psychiatrist and went on a mental health plan to try and identify some tools that could help my disposition.
Jan 2013: I had to finally admit defeat and give up work. I was finally put on a disability support pension in April 2014.
July 2014: I have been on the treatment for 7 months and I have suffered some effect but I have managed to keep this in control. Unfortunately, I am no longer in a good financial position and I struggle to pay for the travel, accommodation and medical assessments needed to continue to access the treatment.
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