MOG Antibody-Associated Disease (MOG-Ab disease)

Lloyd is a husband and father of three, two sons in university and a daughter in middle school.  He was a police officer/investigator for 15 years until his diagnosis of Post-Traumatic Stress Disorder in 2014.  His work as an investigator is respected by many policing organizations including those across the border.   Despite the PTSD diagnosis, he continued his work to help others in the education field and as a volunteer fire-fighter.  In 2016, he started his own business working as a Public Security consultant and has  since been identified as an expert in First Nations Policing.  His work in helping FN Policing services is recognized both provincially and federally. 
 
Lloyd has been a hardworking man his whole life.  He loves to keep up to date on anything related to policing and public security.  He loves hunting and the outdoors.  He adores his friends and his family.  He is known for being kind and generous, always willing to help those in need and always cracking jokes.   
 
ILLNESS ONSET: In early July, 2018, Lloyd began suffering pain in his eyes.  Within two weeks the pain travelled from his eyes to his brain and was accompanied by rapidly deteriorating vision (Optic Neuritis-ON).  By the time he was hospitalized on July 18, 2018, he was completely blind and suffering from an increase in pressure of the fluid in his brain. (Intracranial Hypertension).  Lloyd was immediately flown to Quebec City, which is a 6 hour drive from home, to have a shunt inserted in his spine to help decrease the pressure in his brain. 
 
Lloyd spent 4 weeks in the hospital for testing and recovery. He was followed by teams of doctors to identify the cause of his atypical symptoms. His sight returned and pain diminished steadily with an aggressive treatment of steroids, antibiotics and diuretics.  His initial diagnosis of a once in a lifetime ADEM was dismissed after a recurrence of the pain and vision loss two months after his initial release.  All Lloyd’s appointments for follow up, testing and recurrences are in Quebec City where he meets with his neuro-ophthalmologist, or neuro surgeon.
 
UPDATE: After months without any definitive answers, Lloyd tested positive for an MOG antibody.  His final diagnosis is an MOG Antibody-Associated Disease. MOG-Ab disease is a neuro-inflammatory condition that causes inflammation in the optic nerve but can also cause inflammation in the spinal cord and brain.  This is a lifelong condition which will require treatment with an auto-immune suppressant.
 
This disease and the steroid treatment both have very unpredictable symptoms and side effects.  Right now, the most difficult is the extreme fatigue and the eye discomfort from the ON, sometimes severe, all this making it difficult to return to work full time. The steroids are to keep flare ups at bay until Lloyd starts his new auto-immune suppressants in April, 2019.  Every flare up with vision loss from now on will put him at risk of permanent damage to his eyes.  Despite everything, he is slowly trying to get back into work mode, while adjusting to the his condition and treatment.
 
The money raised is to help with hospital bills that are not covered and travel expenses.

Donations

  • Krystle Caplin 
    • $40 
    • 17 mos
  • Blue Knights Trois-rivières 
    • $500 
    • 17 mos
  • pierre cloutier 
    • $20 
    • 17 mos
  • Patrick Celestin  
    • $50 
    • 17 mos
  • Michael Forcum 
    • $100 
    • 17 mos
See all

Organizer

LN Alcon 
Organizer
Listuguj, QC
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