After a decade of being misdiagnosed with various symptoms, my daughter, Laura, was diagnosed with chronic late stage Neurological Borrelia, Bartonella and Babesia Lyme Disease, including a host of Lyme related coinfections in October, 2017 and in November, two of her three children were diagnosed with the same. Finally, we have an answer that makes sense. (Sad!)
Her daughter Kate (12) and son Payton (10) were born with Lyme disease which was passed to them through the placenta and are also experiencing symptoms. The youngest, Lydia, (8) has tested negative at this time.
Lyme disease is highly misunderstood. Many believe it is hard to get and easy to cure but unfortunately, that is not the case. It is most often misdiagnosed for years. Symptoms can change frequently. Because Lyme attacks your immune system and causes massive amounts of inflammation, your symptoms can vary from day to day and strike various parts of the body, randomly. Someone with Lyme disease may feel up for hiking or playing sports one day, and be genuinely bedridden the next. Not being able to predict how you will feel, or knowing what you will be able to accomplish each day can be incredibly frustrating. Without proper treatment, Lyme is often a lifelong battle that is very debilitating, and can be fatal.
If caught early, which rarely happens because of misdiagnosis, the standard antibiotic protocol is effective approximately 70% of the time. However, after reaching advanced stages, there is no cure for late stage Lyme. Only a lifelong battle of keeping it in remission. Initial treatments are very costly for one person, let alone three. Most of the specialized treatments my daughter and her children need are not covered by medical insurance.
Laura’s main symptoms in the past 10+ years have been chronic fatigue, severe headaches, muscle weakness, many neurological issues, brain fog and confusion, short term memory loss, joint swelling and arthritis, spinal pain, multiple heart related issues, vertigo like symptoms, insomnia, severe anxiety and panic attacks, massive amounts of inflammation, numb arms and hands, severe knee, elbow and hand joint pain, rashes, thyroid dysfunctions, noise and light sensitivity, dizziness and flu like symptoms. These are all typical symptoms of Lyme, although there are many more we hope they don't have to experience with proper treatment.
They need to be treated by a Lyme specialist who can guide them into remission, but their medical insurance is not required to cover these forms of treatment. They are on the books to start treatments the first week of April with a specialist who has a great reputation for treating Lyme. So much so, that he has a 6 month waiting list. People travel to him from all over the country because of his success in this area. The problem is funding for THREE. Starting at $3,500 per person, plus additional required treatments, and supplements that are costing $800.00 plus per month, it is way beyond what they can manage and need your help raising the funds to be able to follow through with this desperately needed treatment.
I continue to be amazed by my daughter’s commitment, positive attitude and perseverance. As a single Mother, she is doing all she can to improve their immune systems through diet, herbs and supplements at home. She wants nothing more than her children to be healed, putting herself last because the funds simply do not exist. She continues to work hard, full-time, even on days when it’s hard to move, but she cannot do this alone and I can only help so much. Every penny donated will go directly to their medical expenses which I will be paying, with your help, and I cannot thank you enough.
Thank you for taking your time to read my GoFundMe page. We will so appreciate your consideration for any donation (even the cost of a cup of coffee) and prayers for their full remission. To help me get the word out, please share my link to your Facebook timeline. Thank you!
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