Hope for Oliver

Oliver was born on July 21st, 2014. He was diagnosed with pulmonary atresia, IVS. He had open heart surgery a week after he was born. They kept changing the dates for his surgery. We stayed in MN (which is 6-7 hours away) for about one month. Living in a hotel, the Ronald Mconald  house then the hospital which had one very hard bed and no space in the bed for two people but we were closer to him and we so happy that he was close so we didn't have to call the hospital so many times to see how he was doing. He had a second open heart surgery in February 2015. It was a faster recovery but the heartache was multiplied. It was unbearable. I took so long hugging him, tons of kisses and held so much that that the nurses were afriad that I wouldn't let him leave the room. I never wanted to let him go but I had to and just hoped for the best. We will have to drive to Minneapolis, MN for his next surgery. We know it will be soon, we just don't dont know the date because they don't have a date We will most likely get a1-2 week notice. His last surgeries we had about or less notice of when his surgery date was set. We have two other children which is very difficult. They hate being in any hospitals.  We usually try our absolute hardest to find someone who will take them. Sometimes when we are in MN the kids stay at multiple places if we can find any on short notice. We really have no time to prepare for these trips because it's always such short notice. We also never know how long will be up there for. The nurses and doctors say different days. It is always later than what they say. Of course I was Oliver to be healthy and safe to come home however many days it does take but when this happens we are short on so many things. The people who watch our kids (if we can find anyone to do so) start to get annoyed and upset. Sometimes we have to go get them from Bismarck ND and then drive all of the way back even if there are only a day to a few days left that Oliver will be hospitalized then we drive back. The amount of gas that we do use always hurts us financially of course. Again, Oliver is completely worth it. He's a miracle. It's been very difficult to catch up with Oliver's medical bills because most wasn't approved under our insurance because it was in a different state and we had no referrals from his doctor for his medicine, first visit there and so on. If you could share this page that would help so much. We're so worried about his next surgery that is coming up we aren't sure if we'll be able to get by or even to afford to drive there. They will cover for Oliver to fly out there so I'm glad that he will be safe and taken care of but it breaks our heart to think about us not being able to be there. If it came down to it I would sell everything I own. He NEEDS his mommy and daddy there with him. According to doctors, nurses, parenting websites and some people I know with the same heart defect as Oliver or have little ones with it say that it is so completely important for him to heal if the presents are there, talk to him and hold him. We would do anything  to be there. It makes us feel very small to ask for help but we don't know what else to do. We don't have any other choice really. We were told about this website and it was our last hope. Oliver also has a Facebook page to keep everyone posted (we try to keep it very positive) and so he can see how many people love him. We read him every comment and message and he loves it. It is called "Hope for Oliver" if you could please go and like the page and/or share it that would help so much. We really need as much help as we can get. Prayers and good vibes are always appreciated. We respect what you believe in :) Thank you all for your support and help. Oliver's mother just had her failing hip replacement (due to rare bone cancer) fixed in MN too. That really put a huge dent out in our finances. We won't know what was all covered until later. The hip replacement costs as much as a brand new BMW. Not to mention the walker and the personalized brace .  Please if you can share this page. Any help we can get we are completely thankful for and have every intention  on paying it back or paying it forward when my husband gets a job. He had to stay home to help me recover and help with Oliber and all of the kids. Again, we get very embarrassed to ask for help, it makes us feel so small and helpless. I would never con anyone ever. This page is for my son. We absolutely hate asking for donations or any money but this is our last hope. We are so happy that Oliber is still with us and beat all of his battles. He's such a strong young boy. Thank you all for your help. Even to share it really means so much to us. If you can donate at least $1 it adds up. I believe if everyone who knows about Oliver denoted $1 each we would be set. Thank you again for your time it means so much to us. 

Donations

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  • RoseEllen Benkel 
    • $10 
    • 36 mos
  • Karin Ernst 
    • $25 
    • 70 mos
  • Sheila Rhoads 
    • $100 
    • 73 mos
  • Anonymous 
    • $1,000 
    • 74 mos
  • Anonymous 
    • $60 
    • 74 mos
See all

Organizer

Briahnna Lynne Lewis 
Organizer
Bismarck, ND
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