Kyle's was diagnosed with high grade osteosarcoma in October 2017. The cancer started on his left knee. When he did the biopsy the doctors also did a bone scan and CAT scan of his lungs since those are the next places osteosarcoma will spread too. His bones were clear elsewhere, but he had a few small spots that showed up on his lungs. At that time they were too small to diagnose. He began chemotherapy in November with hospital stays of up to 4 or 5 days at a time. After about 6 rounds of chemotherapy, it was determined that the cancer was not responding to the chemo being used.
In his last round, the chemo leaked into the spinal column and went to the brain. He began to have seizures and stopped responding .
He was sent to the ER by ambulance and then to ICU for 2 days. After he stabilized he came home and all chemo was stopped.
Feb 2, he had surgery to amputate the leg. His cancer on his leg was literally the size of a soccer ball! When they took off his leg he lost 28 pounds!
Before surgery we did another CAT scan of the lungs. this showed that the spots on his lungs had increased both in size and in number. But the doctors were unsure how the spots had responded to the chemo. they thought there was a chance they had died even though they were still there.
The amputation was succesful, and the doctors told us we can do more chemo for the lungs if we choose to, but that we don't need to. He understands that we are concerned about the side effects, and also that the treatments have not helped his cancer on his leg.
We chose to continue doing what we could at home for the last 2 months, with hopes to slow or stop the growths on his lungs, and have him enjoy life without chemo.
He recieved his prosthetic leg around the beginning of April, and is learning to walk with it.
He had another CAT scan on April 16, about 2 months since the last one. This revealed that not only had the cancer grown but the number of spots has increased. They also doubled in size since the last CAT scan.
The doctor suggested doing chemo again, but said it won't stop the growth - only slow it down. This might prolong his life but his quality of life would be low due to all the side effects.
The other option the doctor suggested is to keep doing what we can naturally and let him have quality of life.
The medical field has nothing to stop the cancer - his only hope of survival is to try an alternative treatment. These treatments are expensive, and are not covered by insurance. The only way for us to proceed is if we can raise the funds in a few days - we don't have much time!
We have researched several clinics and are inclined to try the Forsythe Cancer Care Center in Reno, NV. They offer a comprehensive treatment program that combines both conventional as well as alternative treatments.
We don't know what the total costs will be until after an initial consultation and some tests are done. Starting costs are $30,000 for the first 3 weeks of Alternative treatments. Chemo treatments are approximately $1,500 to $5,000 per treatment. Supplements range from $800 to $1,000 per month. There will also be travel expenses as well as motels. There are not living arrangements with this clinic. Total expenses could be between $50,000 to $100,000. Any funds we reviece the exceed the need will be donated to another cancer patients needs.
If there is anything you can share we, appreciate it.
God bless you for sharing,
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