This presents several challenges for her family...
Her mom, Shawna, will need to stay with Kayla in the hospital instead of being home with Kayla’s brother Brooks (age 2) and her sister Emelyn. In order for Josh to continue working and paying the bills they need someone to take care of Brooks and Emelyn. Josh and Shawna have a caregiver available to them but do not have the resources to pay for the care for this extended period of time.
We are asking for help so that they can pay a caregiver to be with their other children so Josh can continue to work, and also to bridge the gap from his standard income to the more limited schedule he’ll have to work while he is with Kayla during this time.
“Children with SMA are given a terminal diagnosis, we have been so fortunate to have seen our girl surpass this several years ago. It is our hope that she continue to defy the odds and allow more and more of the world to see what an incredible mind and beautiful soul Kayla has!” -Josh and Shawna VanderZanden
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