Kash Commers
Donation protected
Kash Arian Commers was born November 8, 2017. He came into this world with a condition called Arthrogryposis multiplex congenita (AMC); a condition that effects 1 in 3,000 infants. He was born with contractures at his wrists, hips, knees and feet (clubfeet). Kash also had his umbilical cord wrapped around his neck five times at birth. He is currently being fed through a feeding tube because his oxygen saturation drops significantly when he feeds. He has undergone many tests to find an underlying cause, all with negative results. He is a strong kid and has already gone through so much for his short time on earth.
Mom and Dad, Krystal and Mikel, have dedicated their lives to the service of others. They both work full time as Firefighter/EMS professionals. They are no strangers to stressful situations or trying conditions. When Kash entered this world, they were caught completely off guard. The plans they had made for their future had changed in an instant. The strength, love, and perseverance they have shown in the face of adversity is extraordinary. They have quickly started to become experts on Kash’s condition to make sure that they are providing him with the very best. It has been, and will continue to be an emotional rollover coaster. However, the positivity, hopefulness, and most of all love, that they have for Kash is moving them forward.
Arthrogryposis Multiplex Congenita (AMC) is a disease affecting newborns that results in decreased flexibility of the joints. Symptoms differ drastically from person to person, but typically include stiff joints and muscle weakness. The areas that are most likely affected are the shoulders, elbows, wrists, hands, hips, knees, and feet. The lack of movement, unlike many other diseases, does not get worse as time goes by, but it is necessary to seek treatment to prevent further impediments of the joints.
http://www.aanem.org/Patients/Disorders/Arthrogryposis-Multiplex-Congenita .
Kash has a long and rough road ahead of him that will consist of many trips to specialized doctors for casts, braces, surgery, physical therapy and occupational therapy. All of these treatments will be to gain the basic movements that most of us take for granted on a daily basis. There are many other treatments that have been known to help some families. The Commers family intends to do everything in their power to give their baby boy the best chance at living with this condition. It will be a life long condition and battle for Kash and his family, but they believe that with faith and the grace of god, Kash can live a happy and healthy life.
The Commers family wish that if nothing else, please share their story educate yourself and spread the word about Arthrogryposis Multiplex Congenita. With the education and the help of the community, we may be able to ease the lives of those affected by AMC.
https://rarediseases.org/rare-diseases/arthrogryposis-multiplex-congenita/#general-discussion
https://rarediseases.org/rare-diseases/arthrogryposis-multiplex-congenita/#general-discussion
http://www.aanem.org/Patients/Disorders/Arthrogryposis-Multiplex-Congenita
Mom and Dad, Krystal and Mikel, have dedicated their lives to the service of others. They both work full time as Firefighter/EMS professionals. They are no strangers to stressful situations or trying conditions. When Kash entered this world, they were caught completely off guard. The plans they had made for their future had changed in an instant. The strength, love, and perseverance they have shown in the face of adversity is extraordinary. They have quickly started to become experts on Kash’s condition to make sure that they are providing him with the very best. It has been, and will continue to be an emotional rollover coaster. However, the positivity, hopefulness, and most of all love, that they have for Kash is moving them forward.
Arthrogryposis Multiplex Congenita (AMC) is a disease affecting newborns that results in decreased flexibility of the joints. Symptoms differ drastically from person to person, but typically include stiff joints and muscle weakness. The areas that are most likely affected are the shoulders, elbows, wrists, hands, hips, knees, and feet. The lack of movement, unlike many other diseases, does not get worse as time goes by, but it is necessary to seek treatment to prevent further impediments of the joints.
http://www.aanem.org/Patients/Disorders/Arthrogryposis-Multiplex-Congenita .
Kash has a long and rough road ahead of him that will consist of many trips to specialized doctors for casts, braces, surgery, physical therapy and occupational therapy. All of these treatments will be to gain the basic movements that most of us take for granted on a daily basis. There are many other treatments that have been known to help some families. The Commers family intends to do everything in their power to give their baby boy the best chance at living with this condition. It will be a life long condition and battle for Kash and his family, but they believe that with faith and the grace of god, Kash can live a happy and healthy life.
The Commers family wish that if nothing else, please share their story educate yourself and spread the word about Arthrogryposis Multiplex Congenita. With the education and the help of the community, we may be able to ease the lives of those affected by AMC.
https://rarediseases.org/rare-diseases/arthrogryposis-multiplex-congenita/#general-discussion
https://rarediseases.org/rare-diseases/arthrogryposis-multiplex-congenita/#general-discussion
http://www.aanem.org/Patients/Disorders/Arthrogryposis-Multiplex-Congenita
Organizer and beneficiary
Brandon Edwards
Organizer
Stafford, VA
Mikel Commers
Beneficiary
