Jack just wants to 'be'

We are raising money to aid us in supporting our son with his ever changing medical needs, Jack is 5 yrs old and last year he was diagnosed with duchennes muscular dystrophy; a progressive muscle wasting condition, the treatment is limited and there is no cure. It is 100% fatal. Sufferers lose the ability to walk before their teens, life expectancy is between mid to late 20's; although many don't survive childhood/teens due to heart/lung failure and the endless list of medical complications. Every day we fight a battle we will never win, resulting in the loss of our son. We are raising money to adapt and make alterations to our house to ensure it is wheelchair friendly; we hope to provide Jack with the medical care and equipment that he will need, and an accessible home where we can help Jack as a family to be as independent for as long as possible. We have a small time frame to extend and adapt our home as Jack a rare genetic reading, resulting in a severe form of Duchennes. He is already in a wheelchair part time and already struggles with everyday tasks. It is estimated that within the next year he will lose his ability to climb the stairs. Jack is a gorgeous, cheeky and forever optimistic little boy, who never fails to brighten our days, and as a family all we long for is to provide him with the best life and home possible. We know times are are hard and many struggle financially; we are asking for any donation possible, no matter how small, we appreciate everyone's support. Thank you for taking the time to read this and considering donating.

Jack and family

Donations (0)

  • Holly Edmonds 
    • £200 
    • 12 mos
  • Roisin Rafferty 
    • £20 
    • 13 mos
  • Anonymous 
    • £1,000 
    • 15 mos
  • Jennifer Edmonds 
    • £20 
    • 17 mos
  • Jen Wilson  
    • £5 
    • 20 mos

Organizer 

Lauren Witcomb-Alexander 
Organizer
Trowbridge, South West England, United Kingdom
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