<div><strong><em>Support Stevi and Aaron with Charli's medication and care costs.</em></strong><em> </em>
</div>
<div><br />
</div>
<div><strong>UPDATE: Thankfully, Charli's medication was just approved for insurance coverage as of TODAY (11/1) — so we have adjusted our goal to reflect that. The money donated will cover her hospital bills, journey to meet with disease specialists at Nationwide Children’s in Ohio, and any near-future care-related costs. THANK YOU ALL SO MUCH. </strong>
</div>
<div><br />
</div>
<div><strong>Charli is the sweetest three-year-old girl and her smile is contagious. She is filled with so much curiosity and joy!</strong> She will stop and smell every flower, jump in every puddle, and point out every butterfly she finds. Her family is constantly inspired by the happiness she so easily finds in the little things. Some of her interests are a bit more unusual—like her enduring obsession with eggs—but, like many kids her age, she loves dinosaurs, books, animals, cartoons, and playing with her friends at school. <strong>But for being so young, Charli is facing an unimaginable challenge—she has been diagnosed with CLN6 Batten Disease.</strong>
</div>
<div><br />
</div>
<div>Batten Disease is a rare, terminal, inherited neurodegenerative disorder that affects the brain and nervous system. Over time, it causes seizures and leads to loss of vision, mobility, speech, and cognition. <strong>Right now, there is no cure for this devastating condition. However, there is hope. A medication called Miglustat has shown promise in slowing the progression of symptoms, helping to give Charli more precious time to enjoy life—and for her family to experience the love and joy she brings to their lives.</strong>
</div>
<div><br />
</div>
<div><strong>Unfortunately, Miglustat is currently not covered by insurance. And at $2,000 per month, the cost of treatment is overwhelming for her parents, Stevi and Aaron. So, we’re turning to our community for support. </strong>
</div>
<div><br />
</div>
<div>Every donation will cover the cost of Miglustat and other necessary treatments for Charli's care—like seeing a team of CLN6 Batten Disease specialists at Nationwide Children’s in Ohio or, when needed, making the family home more accessible for Charli.
</div>
<div><br />
</div>
<div><strong>Whether you’re able to contribute financially or help by sharing this page, your support means the world to our family. Thank you for helping us fight for Charli and for giving her a chance to keep smiling and bringing joy to everyone she meets.</strong>
</div>

Anonymous

Neysha Theys

Roland Trevino

brenda johnson

Nicola Massey

Tara Tweedy

Cynthia Hidalgo

Carolina Rodriguez

Laquasia Wells

Melissa Castaneda

Trini F

Xochitl Castaneda

Jennifer Watkins

Alexandra Sanchez

Hope for Charli

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

currencyCode

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

writePath

Stream Notification

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

Influencer - Prod

US fundraisers and US users

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

userCurrencyCode

Localized Currency

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Hope for Charli

Still $65,137 to go. Help us build momentum.